symptoms and questions

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New Member

Date Joined Mar 2009
Total Posts : 7
   Posted 2/6/2011 1:25 PM (GMT -6)   
I went to the DR Wednesday and did the blood work and expect to hear about it tomorrow.  But these are my symptoms, I know some are similar to Lupus like:
flares for 6-8 years of:
joint pain
muscle pain
tmj jaw pain
I also have ulcerative colitis, familial tremors, and heart palpitations that were diagnosed during this time. 
 I always thought my flares of joint pain was the uc or too much caffeine or too much diet soda, or just unhealthy lifestyle, but I have quit all the unhealthy habits and my uc is under control.  
Unusual symptoms(includes):
inflammed, red gums
facial pain like trigemanal nueralgia (but not excrutiating, just painful)
the joint and muscle pain is so weird it just moves from place to place like a Simon game. (toe, shoulder, finger, hip,  knees,           excruciating    and all in the matter of 3-5 minutes)
my feet feel like they are filled with with dough, spongy on the bottom. But not really visibly swollen.
I have always as an adult had bad skin, adult acne, issues with hives, I may have had the butterfly rash at one time, my skin is really jacked up...i honestly would not remember with all the issues I have had.
I exercised all of January despite feeling bad, but by last week I was winding down and now the past five days I am basically just home bound.....ALMOST nothing works for the pain.  Vicodin and 4 ibuprofen begin to touch it, but obviously I cannot function like this.  My biggest fear is this is all in my head!  But it really hurts.  :(
Thanks for any advice you have.

New Member

Date Joined Mar 2009
Total Posts : 7
   Posted 2/6/2011 2:58 PM (GMT -6)   
Oh and I can pop my knuckles every ten to fifteen seconds or so, not that I can...I feel like I HAVE to. They are just filled with fluid.
And when I wake up my face is swollen. I can tell before I open my eyes, it feels sloshy and full!

New Member

Date Joined Mar 2009
Total Posts : 7
   Posted 2/6/2011 5:26 PM (GMT -6)   
noone has one comment to make? :)

Regular Member

Date Joined Nov 2010
Total Posts : 392
   Posted 2/11/2011 10:06 AM (GMT -6)   
Sorry to hear you're feeling so bad.
I have some of the same as you but I have not been dx with anything yet.
Been having lots of blood work done but it seems that just adds to the confusion and more questions.
I climb out of bed every day with all the pain, stiffness and foggy head to face the day.
It's not easy and I'm sorry no one else posted anything to you. It seems on the days that
you are most down no one is around. I figure it must be because they are all feeling about
the same as I am.
Keep you chin up and try to keep moving forward, it's hard but all you can do.
May the sun shine on you and warm your heart.
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