Hello. I'm a 26 year old woman suffering from strange symptoms. My past diagnoses are panic disorder, anxiety, major depression and IBS, but I have had these illnesses for decades and my new symptoms don't resemble my past experiences. In late June of 2010 I started having strange panic attack-like episodes where I would have visual disturbances such as scintillating scotoma/visual snow/migraine auras, tunnel vision and blurry vision, along with breathing problems where I felt as if I could no longer breathe for a few seconds and heavy and dizzy, as if I were going to faint, I would have a fast, pounding heartbeat, nausea, burning sensations in my neck and shoulders and feel completely strange and disoriented. These episodes were nothing like what I normally experience with panic attacks. These attacks were brought on by cannabis and alcohol, or sometimes when I was sober. At this time I also noticed I was having right rib pain along with dark, frequent urine.
By the beginning of July I noticed my urinary symptoms were getting worse. I couldn't sleep without going 2 times a night and would wake up with back/flank pain on my right side that wouldn't go away until I urinated a few times. The pain under my rib intensified and I was worried I had a kidney infection. I went to a clinic and they treated me for a UTI, despite not finding bacteria in my urine. The antibiotics made me severely ill, but the UTI like symptoms subsided for a few weeks. After that my symptoms returned along with foul smelling urine. When I returned to the clinic they found no bacteria again and sent me off. I kept getting worse and new symptoms kept popping up. I noticed I was nauseated every morning, with occasional vomiting, my face started to become red for a few hours each day and I would have painful urinary problems and have visual disturbances.
My doctor thought I had fibromyalgia, but I was skeptical of her diagnosis. She ran blood tests, CBC, blood sugar, sedimentation rate, thyroid hormone and an ANA, which all came back negative. She said I was having anxiety and sent me to a psych. He put me on Xanax and Desipramine for anxiety and depression. The Xanax only helped a little, and the Desipramine even less.
By the time fall came around I had developed daily chest pain, shortness of breath, difficulty breathing, confusion, poor memory, back pain, fatigue, arm/leg weakness and pain, neck pain, stiffened back smucles, paresthesia/numbess tingling/ sensations of hot/cold in face/hands/arms/chest, nausea, facial redness, dizziness, lightheadeness, constipation, urinary problems, visual disturbances, eye pain, dilated pupils, enlarged/painful lymph nodes in neck/armpit/chest, leg rashes, headaches/migraines, muscle jerking, in coordination, loss of balance, spinal zaps/pain, momentary inability to understand words or writing, involuntary noises and movements in arms/legs spine, shaking, urinary incontinence/difficulty urinating, bowel dysfunction, brain fog, cold sores/, mouth/nose sores, and other neuroligical-like symptoms.
The thing I noticed that disturbs me most is this facial redness that lasts for a few hours to a whole day, and spreads from my cheeks to the bridge of my nose. The daily constant nausea. The constant scintillating scotoma and other visual phenomenon. The urinary problems. The involuntary jerking movements and noises. And my swollen lymph nodes.
Another weird thing that happens is when I get angry my heart pounds harder than it ever has before, and it makes me feel faint, euphoric, dizzy and lightheaded.
I had an EEG recently, and had weird jerking and visuals during the test, but it came back negative. I don't know what to do, my doctors are giving up on me, and I'm suffering so bad. I'm utterly convinced that it must be Lupus, MS or another type of inflammatory and/or neurological disorder.
I know I can't get a diagnosis online, but any advice would be very helpful. Should I see a Rheumatologist or a Neurologist?
My mother has epilepsy and supposedly MS runs in my family, not my immediate, but my distant family. I don't know of anyone with Lupus. What could be happening to me?
Post Edited (pink blobs) : 2/7/2011 9:18:17 PM (GMT-7)