I am doing well and continue to "defy gravity" with my recovery. Lupus hit me hard (kidneys, joints, cognitive, fatugue), scleroderma was minimal (raynauds), but polymyositis turned me into a quad and could not swallow. Have made a one of a kind recovery and lead an active (although not as active as before) life despite considerable loss of muscle cells. Lots of damage done but I look as those as speed bumps compared to what I went through in 2005-6.
My rheumies said that my case might "burn out" and so far that is true...no flares of any kind. I get nervous when there is an change in my labs but so far every adnormal reading returns to normal the next time. Almost off all controlling meds except for 2.5mg pred which should go this year unless I have more problems.
I am active on several forums and run a myositis support group in Chicago and volunteer at a rehab hospital and interact with patients. Even though I do not need to post I like to tell people that there can be a light at the end of the tunnel with AI diseases.
My strength continues to improve through exercise but I am working at the wrong end of the clock as I approach 70 but intend to enjoy each and every day I can. No time to waste. Ski season is over for me and I can't wait for warmer weather and golf. Life is good.