Waiting for dx

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Regular Member

Date Joined Feb 2011
Total Posts : 58
   Posted 2/18/2011 3:23 PM (GMT -6)   
It's me again! :-)
I am currently waiting for a dx after seeing a Rheumy last week. They took 13 tubes of blood from me for tests. Scared me to death. I guess my question here is... can you have Lupus without rashes?
I have alot going on in my body right now. I do get rashes that come and go but nothing serious.
I suffer from;
Fatigue, joint pain, muscle pain and weakness, chest pain, had Raynauds but it has gotten better over the years.
My elbows and the joining muscles hurt so bad I can barely pick up a glass of water.
I had a positive ANA and RNP from a previous test.
Won't know what is going on until next Friday the 25th.
I am currently taking 2 meds. One is Tramadol and the other is an Anti Inflammatory drug.
Just wondering what those of you that have Lupus think about my symptoms and your experiences with this illness.
I realize you are not doctors but who better to talk to than the people that live with this every day.
Thanks for your time!

Regular Member

Date Joined Nov 2010
Total Posts : 392
   Posted 2/18/2011 6:06 PM (GMT -6)   
I too am waiting for a dx.
I have had about the same number of tubes of blood taken but it was two visits.
I also had xrays to rule out OA.
I will be going the beginning of the week for chest xrays and more blood. I have an appointment on the 24th.
Hang in there. I'm learning that this is a long journey.
I hope you get some answers soon.
May the sun shine on you and warm your heart.

Regular Member

Date Joined Feb 2011
Total Posts : 58
   Posted 2/18/2011 10:27 PM (GMT -6)   
Thanks for the post. It's comforting to know that we are not alone on this journey. I hope that you get results soon too! Once we get some answers maybe we can get some relief!

Best wishes to you!!!


Regular Member

Date Joined Feb 2011
Total Posts : 58
   Posted 2/21/2011 10:27 AM (GMT -6)   
I was hopeful that there would be more responses to my question about the symptoms of lupus and other member's experiences with this disease. I noticed that quite a few people read the post but no one replied other than MeGoSun who is also waiting for answers. Any one out there that would like to help us and explain your issues with this disease. I tried to go back in the old posts and found a few things... maybe I should go farther back.

Thanks everyone!

Regular Member

Date Joined Apr 2009
Total Posts : 122
   Posted 2/21/2011 12:01 PM (GMT -6)   
Hey Rhonda,
Sorry you are not getting all the responses that you were hoping for.  I think many of us who have the disease sometimes get tired of always talking about it and don't mean to ignore you.  Anyways, I started out over 2 years ago with just mostly joint pain and swelling.  It got soooo bad I became bedridden for about a week and ahalf until the flare subsided somewhat.  How I was diagnosed was based on a positive ANA, a false-positive syphilis test (that I had for 25 years) and joint pain.  No rashes, no sensitivity to sun, no mouth ulcers, fatigue, hair falling out, or many of the other symptoms that Lupus will have.  My rhuematologist diagnosed me based on the 3 criteria that I had.  I sometimes think it is more RA because it affects my hands mostly, but regardless, I have autoimmune issues, and they treat many of them the same.  Autoimmune diseases are tricky and it takes many people along time to get a diagnosis.  Hang in there, you want to make sure that they are covering all aspects of your symptoms and getting you the right diagnosis so you can get the right treatment.  Keep us posted as to results.
Hugs and Angels,
DX - carpal tunnel and sle
RX - plaquenil, prednisone, etolodac, lisiniprol, hormones, tramadol and lots of vitamins

New Member

Date Joined Feb 2011
Total Posts : 1
   Posted 2/21/2011 12:06 PM (GMT -6)   
I am waiting on my test results of my ANA test also. Should hear back around wednesday or thursday. I am so sick of this, whatever it is. I feel like doctors have been brushing me off for the last 3 years and I am so sick of it! Finally got a doctor to take me serious, and is runing a series of tests. She is almost convinced of lupus. We will see. I just want some sort of relief and to know I am not crazy!!

Regular Member

Date Joined Feb 2011
Total Posts : 58
   Posted 2/21/2011 12:31 PM (GMT -6)   
Thanks for the posts!
I hope that you get some answers and some relief Lsaul! I am right there with you at this point!
Thanks for sharing your symptoms Lynette. I appreciate your input on how this disease affects you!!!
Ya know... thinking back years... I had alot of these symptoms after having a ruptured silicone breast implant...
Terrible raynauds, joint pain, hair loss... a whole gamut of issues. After having the silicone removed my symptoms slowing went away for the most part. Last October, after a lot of research and thought, I opted to have saline implants put in. Since the surgery I have been getting sick again. Fatigue, muscle weakness, joint pain and more. 5 weeks ago I started having horrible pain in my right elbow and the muscles around it. It has been terrible. Bending and straightening my arm kills me. Lifting even a glass of water sometimes takes both arms. I wake up in the middle of the night in tears and have to literally use my left arm to straighten out the right... it hurts so bad! I feel like my arm has been crushed by something but have had no injury to it. Last year I woke up and my toe next to the big one was killing me. It felt broken and it throbbed and I couldnt move it. It also turned purple. Went to the Dr and he didnt know what it was. The severe pain only lasted a couple days and mild pain continued for a few weeks but it was tolerable.  Anyway... long story short... (Sortof) lol... I am thinking that I have had this for years and started having mor symptoms with stress in my life and then the surgery I think caused it to flare even more! What do you think?

Regular Member

Date Joined Feb 2011
Total Posts : 58
   Posted 2/21/2011 12:34 PM (GMT -6)   
Lynette... does this site allow you to send messages to other members? I belong to a website for women with BA's and you can send messages to only them.
Though you might know since you have been a member for awhile.



Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/21/2011 1:19 PM (GMT -6)   
If a member has permitted their address to be visible (if the envelop on the left-hand side under the username is colored like mine is), then you can contact them thru regular email.

Other wise, there is no support for personal contact provided directly thru this site.

Hope your drs give you answers soon.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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