Raynaud's Syndrome (simplistic007)

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Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/18/2011 3:30 PM (GMT -6)   
[Moved from the midst of the "old-timers" thread so more folks will see it]

simplistic007 said...
I see that you have Raynaud's Syndrome noted as well. I have been trying to get the General Mgr. or the main contact of this forum to post a new topic for Reynaud's Syndrome, but have had no luck. I sent an email and also posted a request, but yet no answer.

Can you give me input on Reynaud's? I have a very good friend who was just diagnosed w/ this and I would like to be more educated on this topic. Can you enlighten me or does anyone have any input? I appreciate it.

Thank You and hope you have a better day today. I also have another best friend who has Lupus since the age of 12. She just had a flared and almost lost her life, but thank God, she is back in remission. She is now 26 years old. I see her discomfort everyday and she is so strong and full of life and this seems to help her cope daily. The positive attitude behind all the pain keeps her sane.

Good Luck. Stay positive. God Bless.
Simplistic007 (breast cancer remission, FM, (beginning stages of RA), depression.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/18/2011 3:31 PM (GMT -6)   
This website is a labor of love by one individual, Peter Waite admin@healingwell.com, yet costs are incurred purchasing data storage and computer time. So initially the forums were restricted to what amount of storage he could purchase.

There are a number of forums he is considering adding when HW gets the funds to do so -- meanwhile, everyone can do their part to help. www.healingwell.com/donate/ or click on an ad or 2 every time you come on. It think each ad click is a couple of cents...but if everyone does it daily it will add up!

Meanwhile, you are welcome to hang out with us here in Lupus - lots of us have Raynaud's as it is often a secondary disease that comes with Lupus.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Post Edited (Lynnwood) : 2/18/2011 1:36:17 PM (GMT-7)

New Member

Date Joined Feb 2011
Total Posts : 1
   Posted 2/19/2011 11:10 AM (GMT -6)   
With the Weber Wrist Wraps,the temperature of the blood in the wrists is reduced as it is dispersed into the fingers, where it cools rather quickly. With these Wraps, the temperature of the blood is maintained by the ultra thin NASA designed insulation material in the Wraps. In this way, the blood that reaches the tips of the fingers is much warmer and therefore provides more comfort in those areas.
Email: originalsbyweber@gmail.com

Carla Ulbrich
New Member

Date Joined Oct 2010
Total Posts : 8
   Posted 2/21/2011 6:05 PM (GMT -6)   
Raynaud's, as I understand it, can appear alone, or as a secondary condition to another autoimmune disease. I have secondary raynaud's, because of lupus.

I try to not handle the boxes in the freezer section at the grocery store unless i am wearing gloves, and I have battery-powered gloves that I wear in the winter. My hubby bought them from a motorcycle-oriented website. extremely nice to have the warmth, as getting cold hands when you have raynaud's causes a great deal of pain. I love my gloves! They ugly but they are WARM.

Post Edited By Moderator (Lynnwood) : 2/21/2011 9:09:43 PM (GMT-7)

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