elevated antirnp

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the gasser
New Member


Date Joined Feb 2011
Total Posts : 9
   Posted 2/22/2011 8:33 AM (GMT -6)   
As I have posted before, I am a new member and in the waiting process of seeing if I progress into a diagnosable autoimmume DX. I have symptoms of swollen glands, night sweats, low grad temps, malaise, slight fatigue, achey joints when my glands swell. I had a positive ANA and positive anti Rnp. However, my RNp was only slightly el,evated, it was 1.9 and then 2 wks later 2.9. My question is has anyone else had these numbers or nonspecific symptoms? If so, what happened to you? all my other labs and compliments are normal and according to my rheumy nothing is effecting  my organs yet. ( kidney and renal fuction labs are normal)

rhondamac
Regular Member


Date Joined Feb 2011
Total Posts : 58
   Posted 2/23/2011 10:49 AM (GMT -6)   
Hi
I am a new member too and also waiting for a dx. I go Friday to get my lab results. It's a terrible waiting game. I too had a positive ana and anti rnp. I dont know what my levels were though.
I have the same symptoms as you. I have been having horrible pain in my right elbow and the muscles and joints surrounding it for the past 5 weeks.
I hope that you get some answers soon do that you can get some relief!
Keep us posted!

Hugs

Rhonda

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 2/23/2011 10:55 AM (GMT -6)   
Welcome to the world of Lupus --- I bet there is no one here who has NOT had "nonspecific symptoms"! Remember Lupus is an over-active immune system that can randomly decide anything in the body is a foreign object and attack it -- thus inflammation can occur anywhere without rhyme or reason.

Usually most of us have a few places where the inflammation most often occurs and we learn how to keep it in check. Lots of good restorative sleep, healthy foods at the right times, and avoiding stress by keeping my days calm and not overcrowded with activity are the 3 biggest factors for me.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

the gasser
New Member


Date Joined Feb 2011
Total Posts : 9
   Posted 2/25/2011 4:53 PM (GMT -6)   
i saw my rhemy and he said that at this point he is not diagnosing me with anything b/c my labs dont show any end organ damage at this time but that eventually it will probably manifest into something. ( most likely lupus). I'm not sure if /I should be happy or sad. I know you dont want to prematurally diagnose yourself and have that all over your chart, however, i still feel some symptoms and I think if I had a diagnosis than at least I'd feel justified. Sometimes I feel like my family just thinks I'm being whiny or a hypochondriac when I say I dont feel well or I'm really tired. I dont know.. just really having a hard time right now and I'm searching for someone who had been through this.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 2/25/2011 6:06 PM (GMT -6)   
WHAT? Waiting for "end organ damage" before diagnosis? I have not heard of that before - you might want to get a second opinion from a rheumy who participates in your local chapter of the lupus organization.

Are you getting any medication to slow the progression of your disease? Most rheumy's will prescribe plaquenil at first visit if something is leaning toward Lupus - and it sounds like you should be getting this.

And possibly something to stop the inflammatory process you have going on. Definitive suggest a second opinion.

Hope you feel better soon.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

the gasser
New Member


Date Joined Feb 2011
Total Posts : 9
   Posted 2/26/2011 1:09 PM (GMT -6)   
I may have misspoke with the term end organ "damage". What my rheumy said was that as of now,  "my disease" is not negatively effecting my organs ( no renal , liver, lungs effects). So he was ok with watching me closely for a while ( every 3 mo) before starting me on any meds. Complicating the issue is the fact that i'd like to have another baby and not being on birth control he was hesatant to start me on anything. However, I'm suppost to see my ob and him asap if i do get pregnant. I think what i am struggling with most is not knowing for sure if i really have something. I am feeling better right now but i just had a strong round of steroids 3 wks ago or so. I feel tired all the time but not sure if that is b/c of autoimmune or the fact that i have a demanding job, a 2yr old, etc.. My back and knees ache a lot but again "I ask myself is this autoimmune or just overworked? i feel kinda lost. I am type A and work in medicine so it is so hard for me not to understand what is going on in my body. I keep telling myself to just live my life and not think about it but i cant help it. I have seen people in  my job being effected by these diseases ( renal failure, dialysis, hair loss, cardiac issues, pulm HTN, etc...) I can't just ignore this possible diagnosis.  what i'd like to know is how did your disease start out and what helped you, did Paquinel help a lot with fatigue, etc? Anyone pregnant with this diagnosis?

CHAWNIE
Regular Member


Date Joined Jun 2013
Total Posts : 30
   Posted 6/22/2013 12:08 AM (GMT -6)   
The gasser,
 
Not sure if you are still posting or not but I have similar symptoms as you and have the same positive tests (ANA and RNP).  Just wanted to see how you are doing? 
 
I am looking for other's who have had positive ANA and RNP to see how their symptoms are and if they ever received a diagnosis.
Chawnie
37yrs
History: 2002 positive for antiphospholipid antibody, Ectopic pregnancy. 2005 Placental Abruption with son (lost him), after birth positive for Anticardiolipin antibody. No longer positive. 2007 gave birth to beautiful daughter. 2012 miscarriage. 2013: ANA +, RNP +

Symptoms: heart palpitations, lightheaded, fatigue, body aches, headaches

eveinca
New Member


Date Joined Jun 2013
Total Posts : 6
   Posted 6/23/2013 3:04 PM (GMT -6)   
Hi CHAWNIE,

Back in November I came up positive ANA plus what was called high RNP, and indeterminate antidsdna.

Looking back over the past decade, even though I did not officially come up positive on the ANA test until last year,  I've had lots of unclassified, unexplained symptoms--including heart palpitations. These caused me to go to the ER on several occasions, with no resolution. Since they always seemed to happen around my period time, I thought it was hormonal.

I'm very fair skinned and have always had a lot of red in my face, but this past year or so have noticed much more redness and irritation--especially around my mouth and nostril area. Don't know if this is related to autoimmune issues, but it would not be unheard of I guess?

For as long as I can remember, at least 30 years, I sometimes get light headed when I stand up. In recent years I have also become so scattered and forgetful--could be aging, but with the positive ANA and such, could also have something to do with that. I also have shed a bunch of hair in the past year...

I go to see the rheumatologist in July. Have you seen one yet?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/23/2013 7:06 PM (GMT -6)   
Make sure that you both use sun protection and avoid UV rays.

I wear sun protective clothing and a sun hat.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

CHAWNIE
Regular Member


Date Joined Jun 2013
Total Posts : 30
   Posted 6/29/2013 1:08 PM (GMT -6)   
Eveinca - I am seeing a rheumatologist.  I see him once a year unless my symptoms don't improve or get worse.  I am light skinned as well and sunburn easily.    My RE says that my symptoms could get worse in 3 months - 5 years. 
 
Couchtater - thanks for the advice.  I definately need to do that.  My problem is I love being outside.  How do you avoid UV rays?
 
I have been noticing that after I spend time in the sun, that night or the next day I feel yucky.  I feel swollen, shaky, hands shake, lightheaded, headache, etc.  I need to find sun protective clothing and a wide brim hat to wear.  What kind of sunblock is good for people with Lupus or MCTD?
Chawnie
37yrs
History: 2002 positive for antiphospholipid antibody, Ectopic pregnancy. 2005 Placental Abruption with son (lost him), after birth positive for Anticardiolipin antibody. No longer positive. 2007 gave birth to beautiful daughter. 2012 miscarriage. 2013: ANA +, RNP +

Symptoms: heart palpitations, lightheaded, fatigue, body aches, headaches

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/29/2013 8:27 PM (GMT -6)   
Things that emmit UV rays:
Sunlight
Fluorescent lighting
CF bulbs
tanning beds
Halogen lights

I use only LED lights in my living areas at home.

You can find sun protective clothing at these websites and stores:
coolibar.com
sungrubbies.com
Academy Sports Stores

I personally love coolibar clothes. They are made of a lightweight cloth and are soft. I just got in a nice "bathing suit" swim tights and a sun tunic to wear at the beach. I'm still limited in my daytime exposure but this will help some. I miss the beach so much.

A good sunscreen I like is by Nutragena (sp?). I think it's call sheer protection. It goes on easy and dries quickly.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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