Eveinca - I am seeing a rheumatologist. I see him once a year unless my symptoms don't improve or get worse. I am light skinned as well and sunburn easily. My RE says that my symptoms could get worse in 3 months - 5 years.
Couchtater - thanks for the advice. I definately need to do that. My problem is I love being outside. How do you avoid UV rays?
I have been noticing that after I spend time in the sun, that night or the next day I feel yucky. I feel swollen, shaky, hands shake, lightheaded, headache, etc. I need to find sun protective clothing and a wide brim hat to wear. What kind of sunblock is good for people with Lupus or MCTD?