Dear Rhonda and Lynette: Thank you for welcoming me. Rhonda I know what it is like waiting for a diagnosis. I thought for three years that i was a hypochondriac but my Dr. told me that since i kept asking I definately was not. lol... ( i still wonder sometimes..lol) Here is a bit of my current run down:
I take Methotrexate 2.5 6 tab one time weekly, Orencia Infusions Monthly, Prozac 20mg, Glucophage 500 mg BID, Phentermine, Topomax 200 mg, Klonapin (for sleep), Oxycodone 20mg er bid, Hydrocodone/apap 5mg/500, Omerprazole 20mg bid, Advair, Folic acid, vitamin c, d and calcium. Imitrex injections. guissefin and sudafed.
DX: SLE, Fibromyalgia, Gerd, IBS, RA, Osteo, Diabetic Type II, L4-L5 Neuropathy, Chronic back pain, Migraine headaches, Depression and mild anxiety, Ptsd, (That should be most of it.) oh i am overweight. I am working on it. in jan 1 272 now 250
Today I am feeling beat. I tried to do some normal household chores. napped. joints are not too happy. I have a hard time with the guilt of not working (I did go to school to be a dental hygienist) but my hands and feet and mostly i am just not dependable. I recently let my lic lapse so... i still feel i should keep it. ( my secret little token of hope) I am trying to think if I could get into remission what types of volunteering on a limited basis i could do and today i thought of one I could teach a WIC Class. not too germy and people that get wic need to take classes anyway and Oral Hygiene for infants and toddlers is so important and can save people tons of money. (so that is part of me.. always plotting.
Lynette: I have great family support but your words could have came straight from my mouth. I have been married 19 years. I still don't think my husband knows what the word auto immune means. He came home from work (cop) had a DOA and said she was a bit older than me and on many of my same meds with four children and she told her husband ... any how i don't know if stuff like that should be up here but she died. This was 6 years ago. I am sure is is basically aware but would rather not know or understand.
My three teens have all said things that have hurt to the bone. but they go through it too and i will take the honesty.
they have cleaned up my puke, they have drove me to appts,
i am on ss disability and working on military (VA dis) as many issues are linked to serving during desert storm. I have guilt also about disability, it is a double edge sword it covers my meds and helps with co pays and seriously i don't know how we could survive without it as we are nearly drowning on one income and my husband also has guard pay. If i was a horse.... I would have been taken out to pasture and shot years ago.
I can not keep my house as clean as i would like. it isn't piggish, but i can not dust and vacuum and things to make it as lung happy as i would like. i do have pets which adds to it. But i believe they help me in many ways. they never tell on me if i have a bad emotional day. they nap with me and they are more life around me than the life that i have in my own body at times. 2 dogs. molly st bernard husband rescued from work and klaus rott/lab mix 2 cats, sydnee and jack. ,
Well I believe i have rambled on enough about me for now. My prayers go out to anyone on this site Lupus or not. Pain is pain. I would say something really inspiring here but .... ok...get along little doggies get a long. i can't think well right now..lol