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panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 2/24/2011 12:50 PM (GMT -6)   
Hi a friend recommended this site to me and i have thought about it for two years. I have been sick for over a decade. I have SLE along with other stuff. ( I began having symptoms after serving in the persian gulf) long story. It took about a decade to get somewhat of a diagnosis and now I have three auto immune and several other icky things.

I am joining for support, and maybe to give insight, a virtual shoulder and or vs. I want to be less of a burden on my family, I want to remember what joy is. to set aside some troublesome things and enjoy some simpler things. and through this I think with like minded and like health wise people we can find some joy in our somewhat not so comical lives.

I do believe in God and prayer. I do believe in a healthy mental attitude. I also believe i am human and I get pissed and angry!! hugs to all and may your day be filled with a little joy.

Regular Member

Date Joined Feb 2011
Total Posts : 58
   Posted 2/24/2011 3:54 PM (GMT -6)   

Hi and welcome! I am new here as well as well.  The people here are very kind and care about each other very much! I am sorry that you have been dealing with these health issues for such a long time.  I am currently waiting for my dx and have found this site very helpful.  It's nice to look through the posts and it's comforting to know that we are not alone in this struggle. It's nice to meet new people! I hope you stay for awhile!



Regular Member

Date Joined Jul 2008
Total Posts : 440
   Posted 2/24/2011 4:18 PM (GMT -6)   
Welcome to HealingWell Fern!
So glad you became part of our family:)
Crohns, Diabetes type 2, Fibro, (Depression and Anxiety..who wouldn't?) Back surgery on herniated L-4 L-5 and S-1. Total of 13 surgerys!

Imran 200 mlg, Asacol, Colestid, Bentyl, Lamotil, Paxil, Amitriptlyne, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!

Regular Member

Date Joined Apr 2009
Total Posts : 122
   Posted 2/25/2011 10:57 AM (GMT -6)   
Welcome, welcome!!
Glad you found us fern.  I found this website about 2 years ago when I was first diagnosed, but I had been going through symptoms for a year before that.  The people on here are great, and they have helped me through some of the most difficult days ever.  I have great family support, but I don't think they always get what I go through daily.  I am not a complainer, so they see me function pretty much the way I used to, but on bad days I just try to suck it up.  It's nice to be able to talk to people who understand the whole process.  Looking forward to getting to know you.
Hugs and Angels,
DX - sle and carpal tunnel
RX - plaquinel, prednisone, etolodac, lisiniprol, folic acid, tramadol (as needed), hormones and lots of vitamins

panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 2/25/2011 5:12 PM (GMT -6)   
Dear Rhonda and Lynette: Thank you for welcoming me. Rhonda I know what it is like waiting for a diagnosis. I thought for three years that i was a hypochondriac but my Dr. told me that since i kept asking I definately was not. lol... ( i still wonder sometimes..lol) Here is a bit of my current run down:
I take Methotrexate 2.5 6 tab one time weekly, Orencia Infusions Monthly, Prozac 20mg, Glucophage 500 mg BID, Phentermine, Topomax 200 mg, Klonapin (for sleep), Oxycodone 20mg er bid, Hydrocodone/apap 5mg/500, Omerprazole 20mg bid, Advair, Folic acid, vitamin c, d and calcium. Imitrex injections. guissefin and sudafed.

DX: SLE, Fibromyalgia, Gerd, IBS, RA, Osteo, Diabetic Type II, L4-L5 Neuropathy, Chronic back pain, Migraine headaches, Depression and mild anxiety, Ptsd, (That should be most of it.) oh i am overweight. I am working on it. in jan 1 272 now 250

Today I am feeling beat. I tried to do some normal household chores. napped. joints are not too happy. I have a hard time with the guilt of not working (I did go to school to be a dental hygienist) but my hands and feet and mostly i am just not dependable. I recently let my lic lapse so... i still feel i should keep it. ( my secret little token of hope) I am trying to think if I could get into remission what types of volunteering on a limited basis i could do and today i thought of one I could teach a WIC Class. not too germy and people that get wic need to take classes anyway and Oral Hygiene for infants and toddlers is so important and can save people tons of money. (so that is part of me.. always plotting.

Lynette: I have great family support but your words could have came straight from my mouth. I have been married 19 years. I still don't think my husband knows what the word auto immune means. He came home from work (cop) had a DOA and said she was a bit older than me and on many of my same meds with four children and she told her husband ... any how i don't know if stuff like that should be up here but she died. This was 6 years ago. I am sure is is basically aware but would rather not know or understand.

My three teens have all said things that have hurt to the bone. but they go through it too and i will take the honesty.
they have cleaned up my puke, they have drove me to appts,

i am on ss disability and working on military (VA dis) as many issues are linked to serving during desert storm. I have guilt also about disability, it is a double edge sword it covers my meds and helps with co pays and seriously i don't know how we could survive without it as we are nearly drowning on one income and my husband also has guard pay. If i was a horse.... I would have been taken out to pasture and shot years ago.

I can not keep my house as clean as i would like. it isn't piggish, but i can not dust and vacuum and things to make it as lung happy as i would like. i do have pets which adds to it. But i believe they help me in many ways. they never tell on me if i have a bad emotional day. they nap with me and they are more life around me than the life that i have in my own body at times. 2 dogs. molly st bernard husband rescued from work and klaus rott/lab mix 2 cats, sydnee and jack. ,

Well I believe i have rambled on enough about me for now. My prayers go out to anyone on this site Lupus or not. Pain is pain. I would say something really inspiring here but .... ok...get along little doggies get a long. i can't think well right now..lol

panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 2/26/2011 6:57 AM (GMT -6)   
hey re: to a person who is having anxiety and major panic issues. she is quite scared and i know that you may have more insight than i. Raynebow. you can read my response to her under anxiety. i couldn't remember what your user name was. Tons of pain last night, Inj before bed for migraine... wicked back pain... I need sleep..lol i almost wrote spleen now that wouldn't be good.

Hey...put on your full armor of God today.. and find that bit of joy! I have been thinking about joel a lot the past few days. it goes in phases... or my brain overloads. today is the big family girls day out... 10 min from home. David and i were gonna go out last night but seriously i had ranaulds inside i had a winter cap on.. like days growing up at your house in the basement in the summer...lol

today should be mid 50s my stomache ..well you know the drill this flare is kicking me in the tush. i might just go for lunch then have to cut the day short. typical. i really want to have a fun time. david is pulling a long day.

Well my life pretty much sucks since they don't make slippers anymore. we must be living in a communistic non slipper kinda govt. well almost 5 am. pain at about an 8.5 i think i am giving in today. In the search area i typed in Gulf war illness ... about sarin gas and parasympathetic nervous system .. very interesting articles... make me cry but interesting.

hugs to you and yours. Fern

panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 2/26/2011 9:37 PM (GMT -6)   
I had a decent day and i was able to go for a walk at an outdoor mall temp in the mid 50's and i am so thankful. Joints are jumping face is flush and butterfly-e but i felt really like a normal person... i didn't even need a cane. So Thankful for that time today.
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