Borderline SLE?

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Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 2/24/2011 11:58 PM (GMT -6)   
Is there such a thing. I now that SLE goes into remission. My labs go in and out of SLE state. I've been the guinea pig for my Dr's for 10yrs. Now they believe it's borderline SLE. My specialist runs tests on me and primary Dr. every yr and now it's coming like every 3 months to see if the SLE will go into remission, yet since I'm with an HMO (Kai ser) the Dr's don't want to put down SLE for some reason. My specialist calls SLE the incurable illness and wants me to go back the pain management Dr. to see if they can just make me comfortable since my lab work is bad. Also, since the severe weight lose I was recommended to see a nutritionist again My Dr's. won't give me antibiotic's when I get really sick, instead I get prednisone medication. My Dr's believe the antibiotics should be used later in my life. At this time at age 31, I'm at risk of a heart attack, yet they tell me I'm borderline and the SLE will go into remission. All I want is for the SLE to be in my medical file before I leave, just in case. This has me worried. confused

southerndiva
Regular Member


Date Joined Apr 2009
Total Posts : 122
   Posted 2/25/2011 10:08 AM (GMT -6)   
Hey little rebel,
You say you have been seeing a specialist.  Is this a rhuematologist?  If not, you need to find one, and one that really specializes with lupus.  Autoimmune diseases are tricky for all of us, therefore, it becomes hard to diagnose, and many of us don't get a diagnosis, which of course, makes it hard for us to get treatment.  I had been seeing my rhuematologist for a year before she gave me a diagnosis, but she kept me on close watch and eventually it reared it's ugly head full force, but at least I had her to go to and get proper treatment immediately.  Until I went on the meds, I used to have some issues with feeling dizzy, not fainting, but felt weird.  I also understand that some people do have issues with their bowels as well.  Many of them are diagnosed with celiac disease.  After 2 years, my disease is pretty much under control with having the meds on board.  Hope this helps you in anyway.
Hugs and angels,
Lynnette
DX - sle and carpal tunnel
RX - plaquenil, prednisone, lisiniprol, etolodac, folic acid, tramadol (as needed), hormones and lots of vitamins

Littlesrebel
Regular Member


Date Joined Jul 2009
Total Posts : 163
   Posted 2/25/2011 12:58 PM (GMT -6)   
I see a rhuematologist. This is the 3rd one that is treating me. I get tossed around as the medical anomally. I too get dizzy like I'm going to faint and I have bowel problems. Two test come back pos. for SLE, but the rhuematologist said I need more testing. I've done stool samples, urine samples, lab blood work going on for over 10 yrs now. Every 2-3 mths I see my specialist or primary. Once a month I end up in the ER room. Basically I think it's the HMO that does not want us listed with SLE. I've seen it on the news and 60 mins how the HMO's don't want to cover SLE patients.
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