Hey little rebel,
You say you have been seeing a specialist. Is this a rhuematologist? If not, you need to find one, and one that really specializes with lupus. Autoimmune diseases are tricky for all of us, therefore, it becomes hard to diagnose, and many of us don't get a diagnosis, which of course, makes it hard for us to get treatment. I had been seeing my rhuematologist for a year before she gave me a diagnosis, but she kept me on close watch and eventually it reared it's ugly head full force, but at least I had her to go to and get proper treatment immediately. Until I went on the meds, I used to have some issues with feeling dizzy, not fainting, but felt weird. I also understand that some people do have issues with their bowels as well. Many of them are diagnosed with celiac disease. After 2 years, my disease is pretty much under control with having the meds on board. Hope this helps you in anyway.
Hugs and angels,
DX - sle and carpal tunnel
RX - plaquenil, prednisone, lisiniprol, etolodac, folic acid, tramadol (as needed), hormones and lots of vitamins