I agree you shouldn't worry. And I am glad you didn't give up. I live in NY and I am not eligible for SSI either. My brother has ankylosing spondylitis but didn't work long enough to pay into SS so he is on SSI. He can't have or be given any assets, or even try a limited job on the few days in a month he feels better. On SSD, the rules now support a trial return to work without risking your disabled status, but from what I understand, there is a limit to the amount of money you can earn. I applied in July, saw a SSA MD. in August, my 3 drs. and accupuncturist faxed their forms in quickly, my date of disability was Dec after the required 5 month wait and my check started in Jan. I feel very blessed.
Hope you hear soon,
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night.