Trouble with sleep and burning eyes

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panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 2/26/2011 5:51 AM (GMT -6)   
eyes burn at all times of day. I get discouraged. I don't often know why God keeps me around. Overwhelmed just trying to care for myself esp my home. I think the hardest thing is knowing I have no control. Any suggestions? Plus 2-4 Dr. appts a week is it worth it?

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/26/2011 9:54 AM (GMT -6)   
You may have secondary Sjogren's, which often comes with Lupus. It often comes with dry eyes. Initial eye treatment is OTC eye lubricants -- not stuff for contacts, not stuff to "take the red out", but things for "eye lubrication".
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 2/26/2011 1:25 PM (GMT -6)   
I already use otc eye drops i don't know why i can't think of the name off hand. Systane. SLE is just one of my problems. to treat it i use methotrexate and Orencia infusions and oxycodone er twice daily. I have gulf war syndrome. which is several other problems gerd ibs migraines RA and a bit of Osteo ptsd, night terrors I have had my gall bladder and a complete hysterectomy. I am sure i have other stuff i didn't mention... oh fibromyalgia... depression which is pretty much under control and slight anxiety ... I take a klonapin to sleep. i sleep maybe in three hour stints. I am always tired. I try to stay off of steroids as i am overweight.. good news is i have lost over 20 lbs since jan on a modified south beach diet. i am now 245 basically.

I am hopeful, but can not work. sometimes it is difficult to walk dress brush my teeth. some days better than others as all of you have similar problems i am sure. I do for the most part keep a positive attitude... but lately i am pissed and just angry. I have been sick for over 15 years. I started having symptoms after the gulf war in 1991.

I have wicked dry mouth but oral balance (great product) gives me migraines due to the sugar substitute in it. (i get huge migraines from basically any sugar substitute.) my nose gets sores too.. ocean nasal spray seems to help. the back of my throat and my bronchials are dry and i have a persistent cough. I can not keep my home clean enough with my energy level and teenagers and husbands don't get that no immune system = get sick easy. so is this OCD or *****iness excuse my language. and what i really want to know is does dust even matter... or dog hair. Is it worth my worry? life is about quality not quantity?

I feel very overwhelmed, I want more joy in my mind and i want a vacation from me. (more from my health than me) I am tired of waking in pain, living in pain and going to bed in pain. I know that i am doing the best i can. i have great dr.s I just want to know what is my purpose? thanks for letting me vent. Molly my st bernard it was her turn to listen then the other dog, cats husband and teens (three)
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