Im So frustrated & Uneasy...

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Regular Member

Date Joined Nov 2010
Total Posts : 41
   Posted 3/2/2011 9:48 PM (GMT -6)   
So I went to my cardio yesterday cause I had a really bad echo come back.. I have been battling a very very small flare... I mean sed rate was 25 CRP 4.5... But chest pain was so severe it was so uncomfortable just to sit, short of breath walking and I couldnt lay down...  So saw the cardio, she comes in sits down and says well I think that we need to wait till your lupus is under control and do the echo again... now I have been on prednisone for 4 weeks, 2 weeks of 40 mg and the bumped me up to 60 mg that I have been on for 2 weeks now... I have no swelling or joint pain, no rash... I mean as far as I know my lupus is under control... I need you opinion, does this sound like lupus that could be effecting my heart? I was told I have severe aortic stenois & mitral stenosis... apparently my tricupid valve has some damage too but she wouldnt tell me... I feel like these doctors are just trying to make excuses, and if it is the lupus is causes heart problems, still why wouldnt you want to fix it??
Oh just to add, I had my aortic valve replaced 2 years ago, tricuspid repaired & partial paricardictomy... confused
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Endocarditis & Pericarditis,Migranes

Imuran,Coumadin,Topamax,colchincine,Tramadol when needed, Prednisone

Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 3/2/2011 11:29 PM (GMT -6)   
Well, I don't know much about cardiology, but my wild guess is that things are looking okay and she wants to check it again once your prednisone comes down.

You may have inflammation (ie flaring lupus) in the cartilage in your chest -- that often cause chest pain when breathing for lupus patients.

Generally it is better to fix the thing causing the problem, not the thing affected by it. If the lupus is addressed first, the heart issue may disappear when the lupus is under control? Maybe that is what she is thinking?

You may want to ask more questions either to the cardio, her nurse, or to the rhuemy...keep asking until you understand what they are thinking and what the plan is!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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