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Robyn10217
Regular Member


Date Joined Nov 2010
Total Posts : 41
   Posted 3/8/2011 10:05 PM (GMT -6)   

I have been suffering for years with low wbc with my flares which I am sure most of us do.. but I have been in a flare for over a month & half.. and my wbc keeps dropping... from 2.0, 3.98 and back to 2.3 tomorrow I am getting it checked again and I am CERTAIN it is worse... I am exhausted! pale, and my inflammation is back.. I am currently on 40 mg after dropping from 60mg for the last 2 weeks... So how do I get past the exhaustion?  Anyone else have this much trouble with this???


Lupus, RA,Sjorgrens,antiphospholipid syndrome,Endocarditis & Pericarditis,Migranes

Imuran,Coumadin,Topamax,colchincine,Tramadol when needed, Prednisone

Post Edited (Robyn10217) : 3/8/2011 9:48:06 PM (GMT-7)


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 3/10/2011 2:32 PM (GMT -6)   
I noticed that you are taking Imuran. How long you've been taking this? I asked because I had terrible adverse reactions to Imuran and my WBC dropped down to nearly 0. You may want to check with your rhumty about Imuran and low WBC count.
DX SLE 1988; APS (Antiphospholipid Syndrome); High-Blood Pressure; Pred 2mg, Verapmil 40 mg bd (for migraine headaches), Cellcept 2000 mg;Omerprazole 40 mg; Warfarin; Calcium + Vitamin D 1200mg, Folic Acid 5 mg; Simvastin; Rampipril 1.25 mg

Robyn10217
Regular Member


Date Joined Nov 2010
Total Posts : 41
   Posted 3/10/2011 8:24 PM (GMT -6)   
well I have been on and off of it for 5 years.. right now I am off due to the low wbc... and its been a month & half already... but I am suppost to see the doc next thursday and I am sure its not any better.. I just dont want to take any more prednisone... YUCK!
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Endocarditis & Pericarditis,Migranes

Imuran,Coumadin,Topamax,colchincine,Tramadol when needed, Prednisone
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