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Oh thanks! That makes me feel better. I was discouraged by the rheumy I saw recently, he was old and claimed he couldn't see a facial even though my other doctors did. I read that he was more of a RA specialist, not so much of an SLE specialist. I think I'll see a new one that does. I was just wondering if there was a remote chance anyone one here was from Chicago and had a recommendation.
My gp diagnosed me with ankylosing spondilitis, and sarcoidosis two weeks ago, but my pulmonologist said today that didn't have sarcoid granulomas, just one unidentifiable one that was probably fungal but not sarcoidosis.
I have been having Lupus like symptoms for over 6 months. Today my face was so red and puffy, with red spots and raised areas near my eyes. My pulmonologist even commented on it. It goes cheek to cheek, over my nose and chin, even down my neck. I also have bluish toes and red/white fingers that change color according to hot or cold, easy bruising,back pain/pinching, joint pain/joint rashes, weird visual symptoms, myoclonic muscle jerks, chest tightness and slight hair loss when I shower.
I had a negative ANA back in september, but I think I might try again. What other tests should I have my next rheumy do? My gp was pretty sure of the AS in my spine, and suggested I had at least one autoimmune disease, but perhaps another. Rush University, the Chicago medical center/hospital, as many people saw and may remember on the TV drama ER, is a respected institution, but I feel that some of the docs there are good and others not so good. Some of the doctors don't tally all symptoms or refuse to do certain tests or do and not tell what they ruled out.
What tests most strongly confirm Lupus? Or what made your doctor conclude you did?