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Date Joined Mar 2011
Total Posts : 474
   Posted 3/17/2011 8:12 AM (GMT -6)   
I know something is definately going on but everytime I go to a doctor they say everything is okay except for a few minor things then once a year it leads to almost disaster.It started about 3 or 4 years ago with bells palsy and numbness of toe and side of pinky finger,lower back ache after sleeping.I was anemic due to my fibroids and had dysfunctional bleeding so my gyno did a d and c and gave me iron pills with b vitamins,I started getting more anxious and paranoid and would feel like I was gonna faint if I did not eat breakfast,my blood pressure became high and the next year I developed strep in my lungs and worsening asthma,dizziness and feeling of plugged ears and sinuses ocassionally,I also developed a strange circular rash that didn't itch and a circular patch on my nose(the dermetologist said looks like lupus since I had livedo reticularis too)he did an ana test and said well it isn't lupus and lasered my nose and gave me steroid cream for my leg.the rash came back over and over again until the next summer when I suffered status asthmaticus and went into respiratory failure and almost died.Now 9 months later I am having tinitus again,25 percent hearing loss in both ears,lesions and bad taste in my mouth.stuffy feeling in sinuses and ear,the doctors said it looked like I had a herpes infection but while I was in the hospital they did a lavage by way of a pcr that showed no herpes virus  present so I'm wondering if all those oral,genital and facial spots are some kind of lichen.I am always tired and my left toe and lower leg go semi numb.I have tingling,burning,sensitivity everywhere and last night the top of my scalp in one spot burned(kinda like having a pony tail in tight.I have had nausea and upper stomach and chest pain occasionally,I also have a swollen throat that the ent said is acid reflux.I have had t)hese tests.1)cytomeglogvirus,rhinovirus,atenovirus,herpes2)hepetitis c and hiv3)cortisol and thyroid(t4 was slightly low)4)allergy testing5)ana,panca,canca6)cbc7)mri of brain and cervical spine8)emg,eeg,ekg,ecg.9)vitamin levels only d was low but insufficient not defienct10)chest xrays,spirotemys,chest and throat ct scan.I have treacheal damage from the vent and scar tissue that was lasered off caused by treacheotomy and ventilator.I have ground glass opacities in a part of my lungs.The radiologist and my pulmo can't agree.the radiologist said it looked like copd with a splash of pnemonia and my pulmo said no I don't have either since my spirometry was 87 percent.I just want to know what it is,if it's vasculitis or something else,I even had a ige and it came back negative. smhair
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