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Regular Member

Date Joined Nov 2010
Total Posts : 41
   Posted 3/23/2011 5:26 PM (GMT -6)   
does any one have any lung involvement with there lupus?? I just got a call that now I have Pneumonitis.. this is completely new... I see my doctor tomorrow, I will start on antibiotics but I am still in ahh...
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Endocarditis & Pericarditis,Migranes

Imuran,Coumadin,Topamax,colchincine,Tramadol when needed, Prednisone

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 3/23/2011 5:35 PM (GMT -6)   
I've heard it can attack any organ at anytime.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 3/23/2011 7:41 PM (GMT -6)   
Hi Robyn,
   I have lung involvement with Lupus. I'm getting over pneumonia and a partial collapsed lung right now. In 2005, I had Lupus Pneumonitis. 
   I hope your appointment goes well tomorrow. Let us know how it goes. Take care. You will be in my thoughts and prayers.

New Member

Date Joined Nov 2010
Total Posts : 2
   Posted 3/23/2011 8:58 PM (GMT -6)   
What were your symptoms? I often feel SOB and weak. Let us know how it turns out and I wish you the best.
What God has for me it is for me!

May God bless you and keep you.
Dx: SLE /2002, sulfa allergy. Taking placq,Imuran,prednisone ,rituxan infusion and IVIG when needed.

Regular Member

Date Joined Jan 2011
Total Posts : 82
   Posted 3/24/2011 5:24 PM (GMT -6)   
I have pleurisy, but have never had pneumonitis. Hope you feel better soon!


Regular Member

Date Joined Nov 2010
Total Posts : 41
   Posted 3/24/2011 11:31 PM (GMT -6)   
thanks all... yeah my appointment was interesting.. my docs said that I need to get on the new med my other treatments arent working but untill we can get it I get to try cytoxan.. I am really nervous.. things just seem to get from bad to worse.. Im hoping this helps..
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Pericarditis,Migranes
AVR & Tricuspid Repair 2008

Imuran,Coumadin,Topamax,colchincine,Wellbutrin, Prednisone
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