Polymyositis, Pregnancy & Herpes

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My Life
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Date Joined Mar 2011
Total Posts : 6
   Posted 3/24/2011 2:59 PM (GMT -6)   
 
:-)  
My husband & I are wanting to plan on having a baby.  I have had Polymyositis for 9 years and with the help of meds, my disease has been in remission for 3 years.  Just this past year I have had problems with high triglycerides.  I currently take Imuran 150 mg,Prednisone 10 mg, & Wechol.  I also have Herpes, in which I take Valtrex on an as needed basis.   
 
Is it possible to have a healthy pregnancy/fetus while on these meds?  Is there any trace of this disease being inherited by the baby? 

Polymyositis, Raynauds Phenomena, HPV, Herpes

Meds: Imuran 150 mg, Prednisone 10 mg, Valtrex as needed

Post Edited (My Life) : 3/24/2011 2:04:52 PM (GMT-6)


Lynnwood
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Date Joined May 2005
Total Posts : 7723
   Posted 3/24/2011 4:36 PM (GMT -6)   
While there is anecdotal evidence (ie hearsay) of family affinities for Lupus, but there is no scientific evidence linking Lupus and heredity.

It's probably best to have a long discussion with your doctor, as well as with a high-risk obstetrician.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Bsime
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Date Joined Apr 2006
Total Posts : 1344
   Posted 3/25/2011 9:49 AM (GMT -6)   
Here is an article from a well known researcher at Johns Hopkins explaining what is known about AI diseases.  There is a genetic factor involved but most are NOT true genetic diseases.  For instance, a rare myositis disease called sporadic inclucion body myositis is not but there is an even rarer form that is, hIBM.
 
 
AI diseases do tend to run in families and that has been statistically documented but not necessarily the same disease.  The article explains the role of heredity in most AI disease as well as how triggers work.
 
Another article that puts things into perspective.
 
 
Bill

My Life
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Date Joined Mar 2011
Total Posts : 6
   Posted 8/30/2011 3:23 PM (GMT -6)   
Just a quick updated, I am currently 15 wks pregnant. Have been seeing a local OB & a specialist at John Hopkins. Things are going well. Have to be followed closely. Have been feeling great, no morning sickness at all.
Polymyositis, Raynauds Phenomena, HPV, Herpes

Meds: Imuran 150 mg, Prednisone 10 mg, Valtrex as needed

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/30/2011 6:27 PM (GMT -6)   
Wonderful and Congratulations! :)
I pray for a smooth pregnancy and a beautiful, healthy, bouncy baby.
Joy

luvskermit
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 8/31/2011 8:46 AM (GMT -6)   
Congratulations!! How very exciting! A baby always brightens up the world.

Can I ask what symptoms you had with the polymyositis?

My Life
New Member


Date Joined Mar 2011
Total Posts : 6
   Posted 8/31/2011 12:05 PM (GMT -6)   
When 1st diagnosed with Polymyositis 10 yrs ago I was severly weak. I could not rise from a laying position, walk for any distance, very tired, I would pass out without any warning, CPK levels were above 13,000!! Muscles hurt all the time.

Now with my disease in remission my CPK levels are at 150. My upper body/arms still have some weakness but I have recoved all muscle strength in my lower body.
Polymyositis, Raynauds Phenomena, HPV, Herpes

Meds: Imuran 150 mg, Prednisone 10 mg, Valtrex as needed

slee51
New Member


Date Joined Aug 2011
Total Posts : 3
   Posted 8/31/2011 9:08 PM (GMT -6)   
No morning sickness? Lucky woman! Congrats and cheers to a healthy, happy pregnancy!

My Life
New Member


Date Joined Mar 2011
Total Posts : 6
   Posted 9/2/2011 8:27 AM (GMT -6)   
NO morning sickness at all!!! =) Has been a wonderful pregnancy so far.
Polymyositis, Raynauds Phenomena, HPV, Herpes

Meds: Imuran 150 mg, Prednisone 10 mg, Valtrex as needed

My Life
New Member


Date Joined Mar 2011
Total Posts : 6
   Posted 11/3/2011 12:35 PM (GMT -6)   
Just a quick update: We are now going on 25 wks Prego!!! Everything has been outstanding for our little GIRL. I have tested Negative for SSA & SSB. Starting at 28 wks we will have wkly fetal testing consisting of NST, biophysical profile and umbilical doppler studies. Looking forward to our new addition.
Polymyositis, Raynauds Phenomena, HPV, Herpes

Meds: Imuran 150 mg, Prednisone 10 mg, Valtrex as needed

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/3/2011 5:10 PM (GMT -6)   
Congratulations!!!!
A sweet little girl.
Best of luck!
Joy

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 11/4/2011 11:07 AM (GMT -6)   
congrats! How are you feeling?
Denita
**************************************
Rheumatoid arthritis with secondary Sjogrens, Fibromyalgia, meniscus tears in left knee, Cancer survivor

My Life
New Member


Date Joined Mar 2011
Total Posts : 6
   Posted 11/4/2011 1:02 PM (GMT -6)   
I am feeling great. Blessed to not have had any flare ups. Medications have not had to be elevated as of yet.
Polymyositis, Raynauds Phenomena, HPV, Herpes

Meds: Imuran 150 mg, Prednisone 10 mg, Valtrex as needed
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