Hi! Lucy and Panther Fern, and all,
Brain fog, for lack of a better term for cognitive impairment, is the main reason I had to stop working. Words, gone. Thoughts, chaotic in slow motion. Overwhelming anxiety, scary. And I can go to bed at my usual 5pm crash time, and wake at 9 pm with my nerves screaming and every neuro symptom in the book driving me to the prn prednisone script. My usual trigger is when I have finally weaned back down to my maintenance dose of 5 mg of prednisone every day, and it's like lupus screams "gotcha' and the crashes start all over. I have two little poodle schnauzer mutts, Wilbur and Alice Mary, and they sleep in donut beds tucked under polar fleece blankets. They have been trained to stay in their beds unless told they can get out, because the burning pain and swelling in my legs would wake me up because they wanted to sleep tucked against my legs. My husband built me a bed cradle to hold the sheet and blankets off my legs. We adopted Alice as a playmate for Willie, because I can no longer walk far, or for long. I have scary high blood pressure, and I have been blessed that my meds help so much. I am glad you are going to a neuro, ask around for one who is familiar with pts. who have autoimmune disease. My primary family doc, my neuro, and my rheumy are excellent about communicating together. The neurotin I am taking has been the one thing that helped my neuro symptoms the most. I hate the neuro flushes, when I am suddenly bone chilled freakishly cold, then burning and feverish without a fever, and it's nothing like the hot flashes I suffered when I went through menopause when I was 50. Hey, wanna nut?
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night.