Wow Pink Blob and Vinrouge,
It sounds like we are having pretty much the same thing going on....so wierd, isn't it? I think what clicked was when one of you mentioned that the one medicine only helps those with a specific B-cell antibody and that is also what the ANA tests for. It makes a great deal of sense that we all may have Lupus but it has another antibody that they have not discovered yet... After all, they are just learning about all these things and even my doctor said they really know very little about Lupus and are just learning! Maybe that is the case here.... I think I will ask my family doctor who really seems to care about this and just throw it out there that is there possibly no test for the type of antibody or B-cell that is causing the problem for me as I am seeing many with the same symptoms as me that do not test positive for the ANA (or any bloodwork for that matter?!) He is pretty "hip" to the latest medical news and all and I find I can talk to him pretty easily too. I think maybe this will help him with diagnosing me.
Thank you all and keep your chins up--It is really helping me to stay in touch with you guys--believe it or not--I look each day for messages from you all because it keeps me from getting discouraged! Has anyone heard from my ShariBari recently? I hope she is ok--wasn't her pleuritis getting pretty bad and they had to do another test on her? If you see this, ShariBari, we are thinking of you honey!!!! You are such an example to all of us and I look at you as my mentor and friend! You are paving the way for all of us to get true diagnoses. I think we all need to work at this where our doctors are made aware and let others know that no one should live in this type of pain and discomfort for year after year!!! Thinking of all of you! Nicki