S.S. Disability question (lupus, cryoglobulinemia, hep C, R.I.)

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reddheddz
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 4/4/2011 1:08 PM (GMT -6)   
I have lupus, cryoglobulinemia, rhuematoid arthritis, and hep C along with their numerous symptoms. I was finally approved for disability compensation. Before I was approved, I was collecting unemployment compensation and looked for work because you have to to collect. I found a part time job 2 months before it ran out. I ended up getting a disability check in January for the month of December. Now I need to call SSDI and tell them I worked part time in December, but I'm afraid they'll take away my disability checks. I would have had no income at all in December if I hadn't worked. It was terribly hard to get through the day at work and my boss kept yelling at me because I couldn't do what they hired me to do. I also realized my memory issues were a huge problem. It wasn't as apparent when I wasn't working. When I told my boss I was approved for SSDI, she let me leave that day and she told me they were trying to figure out how to let me go without risking me suing them. After working each day (sometimes just for a couple hours), I'd end up exhausted and stay in bed until the next time I had to work, sometimes several days or a week later. I'm so afraid to report that I worked because I know I can't hold a job. I forget everything! I think I'll remember things but then have no recollection. I even missed work several times because I had no memory of being asked to come in even though my boss said she told me 3 times. She started writing everything down for me. I haven't been tested for cognitive dysfunction because I keep forgetting to tell the doctors about my memory issues. 8^O Does anyone know how I should handle this. I don't want to lose my house. It's the only security I have. Even with SSDI, my son had to move in with me because I don't bring in enough to pay my bills. Sorry if I sound like a cry baby. I just get so scared. I use to be strong and independent. That's not who I am any more. I'm trying to accept who I now am, including the fact that I see a bloated stranger in the mirror. Thanks!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/4/2011 2:58 PM (GMT -6)   
I suggest printing out what you posted above. Or cutting/pasting it to a file you can edit. Take it with you to SSD and your doctors - it has some symptoms and explanations already written that will help you get the info to the right people. Or just don't tell SSD until they ask you.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

reddheddz
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 4/4/2011 3:31 PM (GMT -6)   
I wasn't expecting to be approved so quickly (under 1.5 years) because my sister in law waited 3 years before being approved. I'm worried that if I don't report it they'll think I'm being sneaky. I would rather have not worked. It was extremely stressful, knowing I wasn't cutting it. The manager would yell at me in front of people, saying that if I can't pick up my speed she'd have to let me go, quite embarrassing! At least she did say she'd tell SSDI that I wasn't physically able to do the work.

Thank you so much for the quick response. Though I've been sick for a few years, it took a year or so to find out all of the things that were wrong with me. Now I'm trying to come to terms with the fact that my future will not be as I'd hoped it would be. I also have to get use to looking fat, or, more honestly, being fat, especially in the face. But, I try to remind myself that at least I can walk and use my hands again. As bad as Prednisone is, I no longer think I'd rather be dead. I actually feel pretty blessed (most days).

Joe Baby
Regular Member


Date Joined Dec 2010
Total Posts : 25
   Posted 4/6/2011 5:02 PM (GMT -6)   
I went back to work while I was waiting for my disability also. I worked just about 2 months before I was fired again. My lawyer and judge were aware and it didn't have any baring on my case. Hope this helps.. I did get my disability.....Good luck....Joe Baby

reddheddz
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 4/6/2011 5:42 PM (GMT -6)   
Thanks for responding. Your response gives me hope. Thanks.
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