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tfofd
Regular Member


Date Joined Apr 2011
Total Posts : 56
   Posted 4/5/2011 8:39 AM (GMT -6)   
please delete

Post Edited (tfofd) : 6/10/2011 7:00:08 AM (GMT-6)


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 4/5/2011 11:51 AM (GMT -6)   
Yes, it has. I have been here that long and people have had it.
 
Enjoy what you can today and leave the rest for another day.
 
Frank
 

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 4/5/2011 8:32 PM (GMT -6)   
Anti RNP often does not show up for quite some time.  My doctor guessed I had MCTD many months before labs confirmed it.  My initial diagnosis was lupus.
 
Bill

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 4/6/2011 8:04 AM (GMT -6)   
MCTD is a complicated disease that presents differently in every patient.  It is defined as lupus SLE, scleroderma and polymyositis but sometimes other AI diseases are present.  You can have symptoms of any combination of the diseases and to any degree....or not at all.  It is a very difficult disease to diagnose because you can have so many different symptoms. It is a combination of those symptoms and the confirmation of ani RNP in labs that confirms the diagnosis. 
 
I presented with gout like symptoms then lupus and that was the first diagnosis.  Muscle weakness led my rheumy to think I had myositis and probably MCTD which took several more months to confirm.  After 6 months PM symptoms dominated and I almost did not survive.  I know several others with MCTD and their cases are entirely different from mine and much milder.
 
 
 
 
 
Bill

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 4/6/2011 9:47 AM (GMT -6)   
MCTD is a separate disease classification.  By definition it is lupus, scleroderma and PM but you might or might not have symptoms of all those.  If you exhibit symptoms of lupus you do have lupus...if you have symptoms of PM you have that....   MCTD is an overlap disease meaning it overlaps several diseases which is quite commone with autoimmune diseases.  It would be correct to say you have MCTD or lupus or PM or scleroderma IF you have symptoms of those.  Read the links I provided and it should help you understand things better.  The nature of AI diseases is such that whatever disrupts your immune system to produce X symptoms can also produce Y symptoms.  MCTD is like that and very unpredictable but treatment is similar to lupus or pm.  AI diseases are not like others where a specific pathogen causes a specific disease which has a defined pattern. 
 
Both lupus and PM can cause muscle weakness but PM has a very distinctive pattern of weakness and an experienced doc should be able to determine that.  In addition, those with active PM have elevated cpk numbers and that should be tested.  PT/moderate exercise is important even if it is only range of motion, stretching and light resistance.  Othewise you will be on a path to significant dysfunction. 
 
Bill
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