New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

tfofd
Regular Member


Date Joined Apr 2011
Total Posts : 56
   Posted 4/6/2011 9:48 AM (GMT -6)   
please delete

Post Edited (tfofd) : 6/10/2011 7:02:33 AM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/6/2011 11:03 AM (GMT -6)   
Usually the problem is that you are not getting any deep restorative sleep, even though you may sleep and nap a lot. I thought it was crazy years ago when my rheumy suggested a sleep aid -- and the first night I tried what he prescribed I slept something like 15 hours -- but did, at last, feel refreshed when I woke up. Many years later and I still use something or else the 24/7 fatgiue comes back like a freight train.

One warning, thou. Remember to run every OTC & med past all your drs, they all need to be fully aware of all meds, even OTC and hoe remedies, all the time.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/6/2011 6:41 PM (GMT -6)   
Have you been checked for sleep apnea?
Joy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/6/2011 6:46 PM (GMT -6)   
There are lots and lots of other medications besides actual sleeping pills like Ambien. Many of us take other meds where the side effect is to perform as a sleep med - for instance what I use is marketed as an anti-depressant.

I think one of my points is that this can illness can be managed so we have better results. We need to focus on the things we can do to help ourselves and each other. Optimism is a key factor in our recovery.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

panther fern
Regular Member


Date Joined Feb 2011
Total Posts : 163
   Posted 4/7/2011 1:16 AM (GMT -6)   
I tried every sleep med from halcion, ambien cr, reg, lunesta, I ended up taking Klonopin it helps with my restless leg and my sleep i still wake up 2-3 times but i can fall back to sleep and feel rested. Amytriptalin or Elavil is very affective it is a mild antidepressant (that is the generic and name brand) it is safe and helps with sleep a lot of times drs. will piggy back it with another med if you have trouble with depression or anxiety because good sleep helps both.
I lately have been having that loss of will to keep playing the pain game. But even though i have had a crappy day i have hope. I decided to take a medrol pack after talking to my rheumy on the phone and going into the dr. because i have been in a flare for a month my hands were killing my knees my well you get it.. every joint, i keep getting thrush oral candidiasis, i am so tired i walk into walls and on top of that i am struggling with some neurological problems. oh and i am diabetic. so everytime i take prendisone... my sugar is out of whack. so i went to talk about getting on provigil which is expensive and is a band aide. I took it before and it does help. it is a drug used for narcolepsy. because it wouldn't make my sugar whacky. well, there is a new weight loss shot, i have lost at least 25lbs since jan but have about 80 to go. i don't like changing two drugs ever at once. so we decided i would go on a medrol pack and start the injections for a month to take more weight off. hopefully the medrol pack will help get me out of the flare enough so i can function and the weight loss will help keep my sugar down. that way i am not putting a band aid on i am trying to stop the circle. then when i am off the medrol and go in for my infusion i will get a cortisone shot in my shoulder and possibly get on provigil for a month or two.

Do any of you have Diabetes II and lupus or RA?and have this problem. Lynnwood... I totally agree Mind over Matter.. I would say 80% of the time I believe challenges are put in our lives for a reason. and It is how I deal with them that is the most important. when i am on here i tend to vent a bit. I have not been in my 80% in about a month, i am still grateful for the challenge i just feel overwhelmed by the obstacles. Thank you for the reminder.

I did feel better today when i saw a different dr at the practice i go to becuz mine was out and i have seen him before. He said something to the effect... You have been given more than a few obstacles to overcome that have no end. He said so..don't try to have perfect blood sugar this week, this week try to move your joints, do a medrol pack and check your sugar and if it isn't high enough for a hospital visit...tell yourself it is a good day. next week when you are off it the numbers will be better and maybe your joints will be tolerable. Sometimes you just have to pick and choose to get by.

I like Realist. like a dr that says everyday no matter how bad get up and walk 15 minutes. that is doable. no matter how crappy i can pace my floor for 15. but if someone said go walk outside a mile everyday. if it is to hot, nope to sunny nope if i feel real bad, i fall a lot, We do live in the real world ours just has modified guidelines.. i just forget that sometimes.

May each of your tomorrows bring you joy, a happy memory and a bit of healing. Its 1:14 a.m. i should really try to hit it. I have been coughing and i don't want to wake up my husband. lol its funny because i think he could sleep through most anything.

thank you all for listening, and being not only a virtual sounding board but real people. hugs to all Diana Fern

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/7/2011 5:34 PM (GMT -6)   
I take melentona (sp?) to help me sleep.
Joy
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, June 22, 2018 3:37 AM (GMT -6)
There are a total of 2,974,375 posts in 326,171 threads.
View Active Threads


Who's Online
This forum has 161247 registered members. Please welcome our newest member, nubipuy.
249 Guest(s), 2 Registered Member(s) are currently online.  Details
PA_grandma, TheJay