just wondering....?

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mscrowbar
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Date Joined Nov 2010
Total Posts : 877
   Posted 4/12/2011 3:10 PM (GMT -6)   
I have been diagnosed with fibro and arthritis. I believe I may have lupus. It is not important to me that I actually have the diagnosis of Lupus as long as the meds I am on are treating my symptoms either way. so my question is: is there meds specifically prescribed for lupus? Meds that slow the progression?
 
I know that sometimes it can take many years to get the diagnosis. Is it going to do any harm not to have the meds (specifically used to treat Lupus)  based on the "lets wait and see" diagnosis?
 
 

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/12/2011 5:46 PM (GMT -6)   
The only thing that I can think of is Plaquenil, an anti-malarial med that is a "disease inhibitor" for lupus. It does require that you get a specific vision exam each year as there are rare eye side effects (reversible when detected in time).

It is important that you do see a rhuemotolgist, so they can use the correct meds for your particular situation. For instance, a "rule of thumb" that works for a lot of people is - prednisone makes fibromyalgia worse, but helps lupus - as far as pain & inflammation management.

Cheers,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 4/14/2011 3:01 PM (GMT -6)   
When I very first started seeing my rheumy (about 3 years ago) he gave me prednisone. A few months later he asked me how I did on it. I said that I didn't feel that it made much difference. Well, I was fairly new to fibro and it was several months later that he asked so, I didn't really remember how I felt. Now that I am more familiar with my body and the fluctuations of good days versus bad days I would like to try it again and see if it really does help.


Should I ask to go on the prednisone again? I don't have the rash or the positive markers so maybe I should just assume its fibro and let it go?
(I don't want to be aggresive and cause any rift between me and my doctor if it really isnt necessary to do so)
Denita
***************************************

Fibromyalgia. Arthritis/bursitis/meniscus tears in both knees.
Cancer survivor

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 4/21/2011 2:30 PM (GMT -6)   
Let your doctor know how you feel.
 
Enjoy what you can today and leave the rest for another day.
 
Frank
 

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 4/21/2011 3:00 PM (GMT -6)   
Saw the Rheumy just last week. I told him about my symptoms and he did his usual exam. He could tell by that exam that things have changed and that something new needed done. He told me to take the mobic two times a day instead of once and to get some blood work done. I never asked him about the prednisone.
Today he called me and said that the blood work was inconclusive so he wanted to do two things: 1) prescribe prednisone and 2) get additional blood work.
I think this is going to be one of those cases of getting the Lupus diagnosis w/o the classic rash (I have freckles so maybe we just aren't seeing it?) and positive blood work? Is that possible? (He does say that I do have fibro but that there are other things going on that cannot be blamed on it.)
Denita
***************************************

Fibromyalgia. Arthritis/bursitis/meniscus tears in both knees.
Cancer survivor

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 4/24/2011 4:28 PM (GMT -6)   
So, just take the small steps and see where they lead too. Many doctors have issues with our sympotoms. I am going through the same tests. But, over the years I have learn and got same answers. Answers at times are good others no so much. Just take it easy as you follow the yellow brick road. We will see you along the path.
 
Enjoy what you can today and leave the rest for another day.
 
Frank
 
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