New Meds...Prednisone, Metho, Cellcept and/or Imuran..??

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MissLadybug
Regular Member


Date Joined Oct 2008
Total Posts : 261
   Posted 4/14/2011 9:19 AM (GMT -6)   
Ok so since the birth of my daughter when I obtained my first remission, I have begun to show signs and symptoms physically and through blood work of active disease again. I have been on the Plaquenil the whole time(about 2 yrs or more)and it is not working. After I see my rheumy this summer sometime she is prob going to start prednisone. I have been on it a few days in the past and it worked for my symptoms but after I finished the prescrip everything came back. She had said if it helps with flaring but I continue to flare when coming off the prednisone then she will put me on a maintenance dose and add either Methotrexate, Cellcept or Imuran.

I am just wondering about everyone's experience with these meds(side effects..how well it worked..etc) and particularly in regards to the "chemo's"...did anyone lose their hair? I already have thin hair and lose some due to lupus..not in clumps but it is thinner...

Thanks all. Hope you are well! -Lupie Britt aka Miss LadyBug

omega
Veteran Member


Date Joined Jan 2007
Total Posts : 610
   Posted 4/17/2011 8:54 AM (GMT -6)   
I don't know about Methotrexate, as I had never tried it, but I can tell you about my experience with Cellcept and Imuran.
Cellcept rocks and have my lupus under a very very good control. Because the Cellcept works for me, I am off prednisone after 19 years. This is also a miracle for me.
As for Imuran, I cannot TOUCH that drug at all. I am one of those few people who cannot tolerate this drug. I think it's few days after I took it, I had severe sign effects which include losing all my hair, low WBC (dropped down to nearly zero), low paletet counts, excruiating mouth ulcer (like those who have chemo). I had to stay in the hosptial for 3 weeks.
DX SLE 1988; APS (Antiphospholipid Syndrome); High-Blood Pressure; Pred 2mg, Verapmil 40 mg bd (for migraine headaches), Cellcept 2000 mg;Omerprazole 40 mg; Warfarin; Calcium + Vitamin D 1200mg, Folic Acid 5 mg; Simvastin; Rampipril 1.25 mg
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