My wife has just been diagnosed with Lupus

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remetiffy
New Member


Date Joined Apr 2011
Total Posts : 2
   Posted 4/15/2011 5:49 AM (GMT -6)   
Hi

My wife has just been diagnosed with Lupus and we are trying to come to terms with it. She has an appointment with a rheumatoligst next week.

Her results were ana 1:320 - 1gg - nucleolar pattern.

I have read that the 1gg can mean complications in clotting as it is the Antiphospolipid Antibodies.

Can anyone help make sense of these results please.

Regards

Robert

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1344
   Posted 4/15/2011 11:07 PM (GMT -6)   
You really need to discuss this with the rheumy.  Nothing is certain based on the result of a single positive test result which was not that bad.  Auto immune disease diagnosis is usually not that precise and is a combination of clinical symptoms and labs.  the nucleolar pattern is usually associated with scleroderma.
 
Make sure the doctor is experienced in AI diseases and get a second opinion from an experienced rheumy who treats a lot of patient with lupus.
 
Bill

remetiffy
New Member


Date Joined Apr 2011
Total Posts : 2
   Posted 4/16/2011 3:52 AM (GMT -6)   
Hi bill thanks for your reply. Other symptoms include swollen ankles, wrists, knee and elbow joints.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1344
   Posted 4/16/2011 8:19 AM (GMT -6)   
That sounds like it could be lupus with kidney involvement.  Usually a condition called proteinuria which I have and is normally treatable with diuretics and an ace inhibitor like lisinopril.  Protienuria filters protein out of blood and causes edema which usually starts in the lower extremeties.  Again, you need to talk to the doctor and if it has not been done there is a lupus panel of tests.  If kidneys are involved you should also contact a nephrologist to work with the rhuemy to get things under control.  He might want to do a kidney biopsy to determine the stage of the kidney problem.
 
Most cases of lupus are mild and treatable so there is life after lupus. Also suggest that you check out LFAI to see if there is a lupus support group in your area.  They are very helpful for newbies.
 
 
Bill
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