That sounds like it could be lupus with kidney involvement. Usually a condition called proteinuria which I have and is normally treatable with diuretics and an ace inhibitor like lisinopril. Protienuria filters protein out of blood and causes edema which usually starts in the lower extremeties. Again, you need to talk to the doctor and if it has not been done there is a lupus panel of tests. If kidneys are involved you should also contact a nephrologist to work with the rhuemy to get things under control. He might want to do a kidney biopsy to determine the stage of the kidney problem.
Most cases of lupus are mild and treatable so there is life after lupus. Also suggest that you check out LFAI to see if there is a lupus support group in your area. They are very helpful for newbies.