Good Morning everyone,
Just found this forum today and thought I would join. I'm fairly new to Lupus so I have many questions. I was just diagnosed with Lupus Vasculitis (or at least that is what the doc is calling it for now). I have 1 friend that has external Lupus, so our symptoms aren't even close to the same. Apparently my blood tests say SLE but most of my symptoms are not by the book. I don't have the butterfly rash, I have this red spider web rash across my sides and back, sore joints, mouth sores and migraines.
Ayway, is anyone else out there dealing with stroke like migraines with their lupus? So far I've been in Imuran (which worked for about 6 months) and now cellcept and predisone 30mg. If I go lower on the presidone the migraines come back.
Also is it "normal" to be sooo tired after doing any form of activity? The doc wants me to walk 30 min a day cause of the predisone weight gain but if I walk around the block (15 min) I spend the next few hours asleep and not able to wake up. If I do any kind of yard work or too much housework, I'm either asleep again or I get another migraine.
Anyway like I said I'm new to Lupus and would love to hear back from others.