I am so glad you went to the ER and wish you hadn't waited so long. Keeping a diary and a using a time line, can be as simple as a calendar with a jot of the current misery, and using the pain scale, 1-10 is a good idea because that is the pain standard they use in most hospitals. Taking pictures is a wonderful thing to do, and be sure to print them off and take copies when you go to your family dr. And I agree, I think you need to find a better one. I could really relate to the comment "feeling like a scolded child". And your pattern of illness is common to so very many of us. You are not alone. I had one thought, you could call the ER and ask when the dr. who treated you is going to be on duty again. Then call and talk to him, asking who he would recommend for followup, and qualifying it as, if I were your wife/sister/child? And ask medical records at the hospital for copies of your medical record. My diary and reports were a blessing when I was applying for social security disability. I was terribly sick for 8 years before I was diagnosed, but it only took 3 months for my SSD to be approved. So hang tough.
ps. I have a 21/2 yr. old grandaughter that I can't chase either. I use a 'monkey pack" which is a little stuffed monkey/back pack combined with a leash. I know, sounds bad, but her safety is my priority and she loves to go outside. We never go far, and she loves her "back pack" for her stuffed pet. I also push an umbrella stroller so I have something to hold, and in case, as so often happens, she decides she needs uppy. I also have bells hanging on the back and front doors, just in case.
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night.