Exercising and Lupus

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New Member

Date Joined Mar 2011
Total Posts : 7
   Posted 4/18/2011 3:12 PM (GMT -6)   
Hello everyone!

I am looking for a way to start back in walking again. My prednisone is making my eating habit so whacked out! I am currently on Plaquenil, Prednisone and Cellcept.

I have been looking online about getting back into exercising to keep the weight off (as well as eating right). I did note that to start off SLOW, build endurance and listen to my body.

Just wondering if anyone started a program or know of one that I can incorporate.

thanks and hope everyone has a good day! xooxox

dx 2005 SLE and who knows what else now! :)

Regular Member

Date Joined Oct 2003
Total Posts : 495
   Posted 4/18/2011 6:37 PM (GMT -6)   
Start slow....sometimes walking to the mail box can be a lot. I too, trying to walk agian.
Enjoy what you can today and leave the rest for another day.

C/Z Fan
New Member

Date Joined Apr 2011
Total Posts : 19
   Posted 4/23/2011 10:42 PM (GMT -6)   
Hi Zuke,

Over the last 20 years since I've been diagnosed with Lupus, I've been fairly lucky to have a mild form. If I listen to my body, take my meds (plaquenil) and get my sleep, I've been able to exercise pretty regularly. Recently I've added lung involovement (pleurisy) and some new drugs (cellcept and prednisone) but they have given me enough energy to get back to the gym 2-3 times a week on a good week. Take it slow and listen to your body.


New Member

Date Joined Jul 2011
Total Posts : 4
   Posted 7/11/2011 2:32 PM (GMT -6)   
Sleep is the key with exercise in the world of a lupus patient. When I started getting into shape three years ago, I found I frequently needed naps following a hard or long effort.

In 2008, I started road bike riding, doing rides of 30, 40, and even 62-miles. In 2009, I started running and swimming. Someone asked me if I did triathlons and I replied that I did not, but started considering the possibility. In August 2009, I did my first sprint triathlon and while it took over two hours and I did it in the pouring rain, I loved every minute of it.

In 2010, I did my first century bike ride (100 miles), my first one-mile open water competitive swim, and my first Half Ironman Triathlon (1.2 mile swim, 56-mile bike, 13-mile run). It took 7 1/2 hours, but I did it. The sense of accomplishment was overwhelming. To think that I could do these things, even though I have lupus and was never an athlete in high school or college because of my disease.

This year I am doing two triathlons; a sprint this June in which I finished 4th in my age group; and a Half Ironman in late August. I have also joined a bike racing team, and am also competing in a two-mile and a six-mile open water swim. In the future, I want to do marathon swims of 12 miles or more to raise money for lupus awareness and research (my mother has it also and has not been as fortunate with her health as I have been).

My training is taxing. There are days that I am exhausted and my body will not cooperate. Gains in speed, power, and strength are slow in coming and take a tremendous effort. It has taken three years to lose 15 lbs and my body is starting to resemble the physique of more typical triathletes. But I am the healthiest I have ever been. I love doing what I do because I shouldn't be able to do it.

If it keeps me off the drugs and my lupus in remission, I am willing to keep doing it.

I share my story because I want you to know what is possible.

I say go for it. You will only benefit.
Dx: Raynauds 1986; SLE/Discoid Lupus 1987; Meniere's Disease 2007. Rx: Antihistamines and decongestants as needed for allergies
I treat my lupus with diet/exercise; avoid processed food, all artificial sweeteners, and whey protein (to which I am allergic). I also compete in triathlons, road bike racing, cyclocross, running, and long-distance open water swimming.

C/Z Fan
New Member

Date Joined Apr 2011
Total Posts : 19
   Posted 11/27/2011 11:23 PM (GMT -6)   
Daphne--Congratulations on your successes! It's good to hear about people managing their lupus successfully. I have been exercising for many years (even before diagnosis 20+ years ago) but this year I'm trying to take it a little more seriously. I had pleurisy for 10 mos. and didn't get to the gym for about 6. Now that I feel better, I feel that it's such a gift to be able to breathe freely and that I want to make the most of when I feel well. Take care.
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