doctor just called

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mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 4/21/2011 11:29 AM (GMT -6)   
My rheumatologist just called to advise about recent blood work. He said that he is not seeing anything conclusive but would like to try two things:
 
1) start me on a low dose of prednisone to see if I see any improvement, and
 
2) get additional blood work done
 
I, on one hand, hope that the prednisone will work because I really could use a break from all these symptoms, especially the burning muscle ache and tender skin. On the other, I hope it doesn't because of what it may implicate.  ( I am correct in saying that if prednisone helps it is most likely lupus, if it doesn't it is most likely fibro?)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/21/2011 12:03 PM (GMT -6)   
Yes, that is a general rule of thumb that is often used. Note that it isn't medically proven and exceptions may occur.

Personally, I think I'd rather have lupus than fibro, since one is a socially acceptable disease and the other is often thought of as "laziness". I hate to bend to popular opinion, but....hey, I'm human!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 4/21/2011 2:09 PM (GMT -6)   
Not knowing is the worse feelings than anything. Once, you know something,, then you know how to adjust.

Best always
 
Enjoy what you can today and leave the rest for another day.
 
Frank
 

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 4/21/2011 2:11 PM (GMT -6)   
I understand exactly what you are saying.

I wonder how it is that so many can be diagnosed w/o the positive ana and some have the positive ana and still cannot get the diagnosis? What is it that the doctors are looking for?

My doctor says that I have fibro but he believes I have some sort of auto immune disorder too. But the blood work always comes out negative and I dont have the tell tale rash. I have all the other symptoms and quite a few that cannot be explained away as fibro.

This is why I am wondering if he is now (after almost 4 years) trying the prednisone? to help diagnose it as lupus without the positive blood work?


I have heard many people on the fibro site say that they did not do well on the prednisone or that they had some bad side effects from it. Is it because they probably don't have lupus or that they only have fibro. I just get so confused about the whole fibro/autoimmune/lupus/blood work thing. I wish there was a more (lupus for dummies) book to help me out.
Denita
***************************************

Fibromyalgia. Arthritis/bursitis/meniscus tears in both knees.
Cancer survivor

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/21/2011 2:50 PM (GMT -6)   
There is a "Lupus for Dummies" book. You can find it at Barnes and Nobles. :)
Joy
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