Weird Lupus symptoms

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New Member

Date Joined Apr 2011
Total Posts : 1
   Posted 4/25/2011 5:21 PM (GMT -6)   
Hi all! My name is Stephanie and am from Phoenix AZ. I am having a second ANA test and am waiting on the results now. So many crazy health issues have plagued me for years.....where do I start?!! The rash that has been hanging around since Nov is starting to go away thank God. The last time I had it was 18 years ago....I'v had many other symptoms then and now. I have migraines,seizures,elavated PPT times, Von Willebrands and even Trans Verse Myelitis. No apperant reason for the headaches and seizures such as epilepsy. I even had to have a hystorecmoty when I was 25 due to excessive bleeding after my daughters birth---3 YEARS of it!! Now the tongue thing is new this time-no taste buds to speak of and swollen and red. There has been a "lump" stuck in my throat for 2 weeks now too. Somebody just tell me whats wrong and lets get on with it, ya know? I can deal with whatever it is...i'm lucky to have a great guy that I'v been married to since high school and 2 terrific kids. Has anyone else had these strange neurological issues or am I just special?! Aww ignore me I just feel very sarcastic right now....wonder why,huh??? Thanks for letting me vent :) Sorry about the spelling......we all have faults and that is MINE Stephanie W

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 4/25/2011 7:54 PM (GMT -6)   
Vent away...
I hope they can figure it out soon for you.

AZ N8ive
New Member

Date Joined May 2011
Total Posts : 11
   Posted 5/8/2011 2:59 PM (GMT -6)   
I have had trouble swallowing, too. After much testing, I was diagnosed with Nutcracker Esophagus. The doc is treating it with Procardia. That is a heart medication, but one of the side effectts is to relax smooth muscles. It works like magic! I finally got fed up with the costs of investigating all of my symptoms, and chalked it up to "how lupus effects me." Now, I do what I can, eat right, exercise, get support when needed and accept the rest. Meditation and helping others works well for me.
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