Undifferentiate Connective Tissue Disease

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paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 4/26/2011 1:12 AM (GMT -6)   
I don't want to bore you with my long story, but I'm hoping someone who's had experience with UCTD can help!

I'm 21 years old.

My symptoms are-
Joint pain in my knees along with swelling and stiffness.
My fingers are puffy, stiff and swollen.
My joints click, grind and pop. They're worse when I walk up and down stairs/hills. Sore all the time, worse at night. Stiff in the morning. NSAIDS (over the counter) help a lot!
Raynaud's Disease
Dry mouth (it hasn't been tested, but I drink so much water and my mouth always feels dry)
Dry, stinging, burning eyes (hasn't been tested, just what it feels like to me)
Odd rashes on my face and chest.
Oral and nasal ulcers


My blood tests-
Complete Blood Count- Normal
CRP <3 (0-7)
Rheumatoid Factor 9 (0-15)
ANA- positive 1:80 speckled.

I've had my ANA tested three times over the past 3 years and they've all been positive 1:80.

My doctor say she's not concerned because 1:80 is low.


I have been given a diagnosis by a rheumatologist of Fibromyalgia, but he took 10 minutes to look over me and didn't do any further testing. I'm also not convinced because I don't have wide spread pain. Another doctor who's look at my symptoms and blood test said he thought it was "an auto-immune inflammatory process"


I'm basically asking, is 1:80 ANA high enough to be given a diagnosis of UCTD?

Thank you!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 4/26/2011 8:44 AM (GMT -6)   
ANA can indicate any of several auto-immune diseases. There is no single test that "proves" or "confirms" UCTD, lupus, MCTD, or any other auto-immune illness. A positive ANA is only one of several symptoms that need to be present to diagnose one of these illnesses. (So No, ANA 1:80 is not enough to dx a particular illness.)

Since it sounds as though your doctors are not thinking about your case in particular, but are hurrying thru things, I would recommend two things - (1) get a second opinion from a rheumy and (2) read up on the symptoms of lupus.

A good website is www.lupus.org - it will give you a list of the 4 of 11 symptoms of lupus. Also one way to find a rheumy interested & familiar with these diseases is to find your local chapter of this org and call it - the doctors involved in it's advisory board are usually those 'in the know'.

Hope you feel better soon.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

thorold
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/2/2011 8:21 PM (GMT -6)   
Hello there
I have the very same symptom that was mention and was diagnose with mix comective tissue disorder by a rheumy. i was place on prednesone for a few years and plaquenil which i still take everyday, this help with the pain and stiffness. it really made a hugh difference.

thorold
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/2/2011 8:24 PM (GMT -6)   
correction! on my last post i miss spell connective .

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 5/2/2011 9:23 PM (GMT -6)   
Thanks, I saw a new GP today who was lovely. She's referred me to a new rheumatologist and seemed quite concerned, especially with my fingers. I'm hoping my new rheumatologist will be helpful!
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