Posted 4/28/2011 8:39 AM (GMT -7)
After 2-3 years with Lupus, I had a period of 1-2 years with the horrid night sweats like you describe. My rheumy never really addressed them directly, and I don't recall having any thyroid tests (certainly didn't see an endocrinologist) -- the night sweats did seem to slowly go away once I was on Cellcept (for my cognitive dysfunction).
Have now been off the Cellcept for over 3 years and very seldom get the night sweats anymore - like maybe only every 8 to 10 months. I think that when I get too tired I sleep so soundly that when I get hot in the night I don't move around enough to get the covers off of me and that has something to do with it.
Meanwhile, I feel your pain. It's bad enough to have to wake up that way, but having to change clothing - or even having to change sheets -- is a horrid reason to be awake in the middle of the night!
I hope you find a solution soon,