hi everyone. I've recent just been dx with lupus and APS . I also have MS . Yes the triple threat. Its been very hard dealing with all this . I even had my doctor repeat the test to make sure and still I had to ask him if I had MS too. He assured me that yes it is possible to have all 3 . My grandmother had lupus.
At first in 2000 I was diagnosed with FMS then in 2006 sero -negative RA . But I was still have neurological problems . 3 more MRI's were done and last year I was diagnosed with MS . This is when they started to question my RA diagnoses. My neurolgist was upset the my MS wasn't diagnosed several years back as now the damage is permanent. Still I keep having unexplained problems. Vascultis showed up on my legs ,UTI infections ,pleurisy,hair loss,rashes. Doc then said mild lupus after blood work came up positives . Still I didn't believe so he repeated the test and also ran it for APS. Both came up positive.
I have seen a Rhuemy yet as we are waiting to see another MS specialist first for treatment options.
Not sure what to do at this point . I'm also living with a frozen left shoulder and I'm in a flare up right now. Well that my story . Looking forward to getting to know you all .
dx. with SLE,MS and APS, ranoud's syndrome, PN ,TN ,Optic neuralgia, spondylosis, legally blind