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daylight2
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 4/30/2011 3:13 PM (GMT -6)   
hi everyone. I've recent just been dx with lupus and APS . I also have MS . Yes the triple threat. Its been very hard dealing with all this . I even had my doctor repeat the test to make sure and still I had to ask him if I had MS too. He assured me that yes it is possible to have all 3 . My grandmother had lupus.
At first in 2000 I was diagnosed with FMS then in 2006 sero -negative RA . But I was still have neurological problems . 3 more MRI's were done and last year I was diagnosed with MS . This is when they started to question my RA diagnoses. My neurolgist was upset the my MS wasn't diagnosed several years back as now the damage is permanent. Still I keep having unexplained problems. Vascultis showed up on my legs ,UTI infections ,pleurisy,hair loss,rashes. Doc then said mild lupus after blood work came up positives . Still I didn't believe so he repeated the test and also ran it for APS. Both came up positive.
I have seen a Rhuemy yet as we are waiting to see another MS specialist first for treatment options.
Not sure what to do at this point . I'm also living with a frozen left shoulder and I'm in a flare up right now. Well that my story . Looking forward to getting to know you all .
dx. with SLE,MS and APS, ranoud's syndrome, PN ,TN ,Optic neuralgia, spondylosis, legally blind

daylight2
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 5/1/2011 1:11 PM (GMT -6)   
Thats a good question . After years of having MS (being undiagnosed) they had to find the lesions. With MS when you first started having symptomless or relapses there are can be active lesions in brain and or spine. As you start remitting those lesions fizzle out and eventual turn into black hole ,make them hard to see. So in the being stages your brain would have stops that light up showing activity. Now as you age in the disease the lesions get harder to stop . I was told that you could have say many smaller ones that the MRI just doesn't pick up but they are there.
My old neurologist were not MS specialist so they didn't account for this. I also have lesion in my c-spine and t-spine. With old lesions in the brain. As my MS progressed to Secondary progressive MS I'll show less lesions in the brain but a greater progression of the disease.
I also had abnormal tests for nerve conduction study and vision field testing .
Many people test negative for MS at first but years later they find the lesions . This is not uncommon. But all other diseases need to be ruled out first. With MS there does need to be multple lesions found at some point to diagnose this disease . The criteria now is 1-2 lesions. With seperations of flares with in time and space. Meaning documented flare up lasting longer the 48 hours with a 30 days between flares .
I'm being a clear as mud now but I'll put a link that can explain later.
My husbands rushing me out the door. =)
dx. with SLE,MS and APS, ranoud's syndrome, PN ,TN ,Optic neuralgia, spondylosis, legally blind

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/2/2011 4:25 PM (GMT -6)   
The disease is not contagious. It's not fatal if you are treated for the problems that will creep up.
Maybe you can find a very experienced doctor who will treat you?
Ask the doctor if you can be checked for rhumatoid arthritis. It will also get a positive ANA test.
Joy
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