newly diagnosed, what did your blood results show ?

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jases
New Member


Date Joined Oct 2010
Total Posts : 5
   Posted 5/12/2011 1:25 PM (GMT -6)   
Hi all ,
 
I posted on here october last yr , after 4-5 yrs of weird and not so wonderful symptoms and initially negative blood tests , 2 months ago I finally reached a diagnosis of sjogrens and possible lupus .
Just curious to find out what bloods people tested positive for and your top five symptoms . Here are mine.
 
ANA positive
ssa positive
ssb positive
lupus anticoagulant  positive.
 
symptoms :
 
1) fatigue
2) joint pain
3) numbness/tingling
4) intermittent dry mouth/ dry eyes
5) swollen glands.
 
After taking plaquenil 200mg twice a day for 2 months the fatigue is much better , joint pain improved , but I still have gland aching in the cheek area/under the chin and collar bone area , and an ache in my upper right side that I had an mri of today , and pains in my ribs ???
 
 
Any input greatly received guys .
 
thanks jeanster

jases
New Member


Date Joined Oct 2010
Total Posts : 5
   Posted 5/15/2011 3:24 AM (GMT -6)   
Hi ,

Thanks for ur reply . I have only had one raised esr reading out of the dozens I have had taken . My crp is always in normal range too . I don't honestly understand it . It had taken me since 2007 to get to this point . Initially I had negative antibody tests for two years then gradually I seem to be testing positive to more and more . Who know's why ?? . What I would say though is that a dr should be treating ur symptoms , adequate pain relief and plaquenil. Worked wonders for me so far .

J

jases
New Member


Date Joined Oct 2010
Total Posts : 5
   Posted 5/15/2011 3:06 PM (GMT -6)   
Its sooooo annoying that its such a long process , and you get a lot of conflicting advice . I forgot to say in answer to your earlier question that the fatigue is most definitely the worse symptom by far . I got all excited when I first started plaquenil because that improved a lot , but I still get a lot of off days , do you still get flares ?

mandeloo
New Member


Date Joined May 2011
Total Posts : 14
   Posted 5/16/2011 10:19 AM (GMT -6)   
I go all over the Internet message boards on Lupus and AI diseases. The one thing I've noticed is the rheumies that are cold, insensitive and dismissive (sometimes in the face of overwhelming evidence) are mostly female. This astounds me. I try not to make generalizations but it's so prevalent!

I see a Rheumie for the first time Wednesday and I'm scared that he will blow me off.

All I have is:
a speckled ANA of 1:40
high anti-RNP titer
vitamin D deficiency
hair loss
body itching
A weird cold feeling on an area of my right leg which coincides with weakness in my right arm (new just yesterday)
low fever (that's relative to whichever silly thermometer I'm using)
excruciating cluster headaches and migraines
red blood cell count that barely made it to normal range (lower side)
Stiff fingers and toes, sometimes achy
Backache
Petichiae spots
general feeling of fatigue and grossness

My worst symptoms are the headaches, back aches and itching. I've had aches and pains with fatigue (off and on) for what seems like 4 years and have gotten used to it but lately it's really getting to me. I'm 29

Oh yeah I forgot. At the same time last year I had an uncontrollable cough. At this time I was given albuterol for asthma (which helped) but caused wicked side effects. The doc changed it to Xopenex which didn't do anything at all. I stopped all of it and the asthma just went away. Went away? That strikes me now as weird.

Post Edited (mandeloo) : 5/16/2011 10:27:05 AM (GMT-6)

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