4 weeks pregnant and on Imuran, anyone out there have any insight! Scared scared scared!!!

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jelynn22
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 5/15/2011 8:43 AM (GMT -6)   
Hi All,
I am 4 weeks pregnant and currently on 200mg of Imuran and 8mg of Medrol. I am so SCARED!!!! I went and saw a Prenatal Specialist and she feels I can stay on my meds throughout the pregnancy. My husband and I are freaking out. He is in a bad state right now and we are not communicating. he feels thi is all his fault and he does not want to loose mew. This makes it so hard. I don't know what to do and need some help from people who are in the same boat. I wanna keep the baby but my hubby is so scared he wants me to ya know, can't say it. I AM A MESS!!!!! Please anyone with any help, I need it. I am trying not to be depressed and stop crying, its not healthy for the baby, but its hard. I have been diagnosed with Lupus and dermatomyositis almost 2 years ago. Needless to say its been a rough road. Had my gallbladder removed and have had tremendous gastro problems since. I just wanna be as healthy as possible for my child, my family and myself. I have been recently seeing a homeopathic specialist to help and it is slowly working. The probiotic and enzymes are definately a big help. I know I am going on and on but I just need some advice maybe some words of encouragement. I am 34 and don't know what the future has in store for me, all I can do is live for now, well at my best. Thanks so much for listening to my rambles.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 5/15/2011 9:41 AM (GMT -6)   
Imuran should not be taken during pregnancy.  Discuss with your doctor and see a high risk OB asap.
 
Bill

Suesse
Regular Member


Date Joined May 2006
Total Posts : 45
   Posted 5/15/2011 10:13 AM (GMT -6)   
Hi Jelynn22,
I'm on Imuran for Ulcerative Colitis and my consultant told me that another patient of hers recently had a healthy baby and was on Imuran throughout the pregnancy. I think the dose and bloods were closely monitored. The doctor in question is the third consultant I've attended for this condition and I trust her completely. So maybe if you find a doctor you trust and feel comfortable discussing your worries with then you can stay on your treatment and have a healthy baby :-) Best of luck.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7151
   Posted 5/15/2011 9:00 PM (GMT -6)   
There have been several women on the Crohn's Forum that have taken Imuran throughout their pregnancies. They have healthy children with no apparent side effects from their mothers being on Imuran.

Some that have their gall bladders removed then suffer from something called bile salt diarrhea. The gall bladder is no longer their to help with bile. Their are medications that help bind the bile in the stool and lessen the diarrhea. These medications should not interfere with your pregnancy.

Please see your doctor and be frank about your GI issues and your fears. I hope you find peace soon.
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 5/16/2011 7:29 AM (GMT -6)   
Hi!
 I think seeing a high risk OB who has taken care of pts. with autoimmune disease is an excellent idea, and asap. Take a deep breath and try not to worry all at once. And it is ok to be scared. And worried. Your babe has as good a chance as any to be born healthy, no matter how much you worry. Keeping yourself as healthy and well nourished and rested as possible will only benefit you both. Try to just handle one today at a time and keep us posted. Many of us here have been where you are, and know our thoughts and prayers are with you and your family,
hugs,
suetoo 

jelynn22
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 5/19/2011 4:39 PM (GMT -6)   
thank you all so much for your great words, I have been seeing a high risk OB and all my regular docs and seem to be on a good path. I am still on my Medrol and Imuran through the entire pregnancy. So thank you all so much.
SLE with mixed connective tissue disease, possible RA, methyl prednisone, imuran, lexapro

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 5/20/2011 5:33 AM (GMT -6)   
Hi!
Please keep us posted. I know how you will worry, and keep worrying, until you hold your babe in your arms, and forever after that. "Cause that's what moms do. But try to find comfort, each day, in the fact that you are doing the best things and making the best decisions you can, like taking your meds, for both your babe and his mom. Remember that you can't take care of him, (or her tongue tee hee) unless you take good care of yourself first. Yesterday is a done deal, only God needs to worry about tomorrow. Today, please take moments of joy, to balance out moments of worry because you have to take one day at a time. Eat an ice cream for the two of you. Worry at bedtime for alittle while, then rest. Looking back, I am grateful for every moment, of every day, that I carried the babies I lost. I was grateful for the ultrasounds that I had. If you get too scared, for any reason, don't hesitate to call your OB. It only takes a few minutes to send you for an U/S. It gives the nurses job security, and the opportunity to smile and help you not worry so much or accept what you need to. Nobody but pregnant women have any idea, any clue at all about how long 9 months truly feels. yeah
hugs,
suetoo
ps. the one sure thing you can do to help, right now, is eat well with lots of fruits and veggies and dairy.
pps. And drink lots of good, plain ole water
ppps. And pee alot

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.

Robyn10217
Regular Member


Date Joined Nov 2010
Total Posts : 41
   Posted 5/20/2011 2:08 PM (GMT -6)   
I was on imuran my whole pregnancy with my daughter. I cared full term, and with some research I read that it can cause baby's to be born at a lighter weight. I also was on prednisone most of my pregancy, my daughter was born 5lbs 15oz. and she is almost 4 and been completely healthy. I know it was a concern when I was pregnant to but I had to put all my trust in the docs and enjoy all the ultrasounds I got to have because of being a high risk prenancy. Not everyone gets to see there beautiful baby every month to everyweek like us. lol
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Pericarditis,Migranes
AVR & Tricuspid Repair, Paricardictamy 2008

Imuran,Coumadin,Topamax,colchincine,Wellbutrin, Prednisone
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