Cytoxan... side effects

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Robyn10217
Regular Member


Date Joined Nov 2010
Total Posts : 41
   Posted 5/16/2011 5:11 PM (GMT -6)   
so I had my first dose about a week and a half ago.. and I feel great.. right after the treatment i had a little nasuea but it went away. I was wondering for anyone that has gone through the cytoxan treatments when they had side effect and what kind. My doctor says that I will loose my hair, which I am fine with esspecially if I continiue to feel this well.. I highly doubt this feeling will continue due to reading the side effects but we will see. Any insight will help.. Thank you!
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Pericarditis,Migranes
AVR & Tricuspid Repair 2008

Imuran,Coumadin,Topamax,colchincine,Wellbutrin, Prednisone

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 5/16/2011 6:56 PM (GMT -6)   
Hey there! I actually felt so much better on Cytoxan than any other medication at the time. I was on 1800-2000mg every 4 weeks. The side effects was hair loss, which wig shopping was fun, and a very low blood count. A few times it reached to .8, which i was sentanced to "house arrest" until it came back up, which took about a week. The more treatments you have, the more tired and nauseous you will probably feel but if you were feeling as bad I was at the time, the side effects was worth what the medication was helping!! Of course if you have any specific questions I would be more than happy to answer them from my personal experiences! I was on it for 8 months.!

Oh yeah...one major side effect was I started seeing bright pink/red blood in my urine meaning the cytoxan was eating away at my bladder. They gave me extra mesna and fluids to help prevent this from happening again. If you notice any discorlation of your urine (that you are not used to) report it to your doctor or nurse giving you the infusion right away! This is very important to help prevent permanent damage!
Amy
Lupus Moderater
Cyclosporine, Prednisone, Lisinopril,Norvasc, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

Robyn10217
Regular Member


Date Joined Nov 2010
Total Posts : 41
   Posted 5/17/2011 10:37 PM (GMT -6)   
thank you for the advice... yeah so far I am feeling great.. no side effects yet but its only been two weeks. although I do have to ask.. have you had chest pain from the chemo? when did you notice the hair loss... I know everyone is different..
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Pericarditis,Migranes
AVR & Tricuspid Repair, Paricardictamy 2008

Imuran,Coumadin,Topamax,colchincine,Wellbutrin, Prednisone

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 5/18/2011 4:34 AM (GMT -6)   
No, I do not remember chest pain from chemo. That is something that does need to be brought up especialy since you are right 1 1/2 weeks-2 weeks, when your blood counts will be falling pretty low from the treatment. How bad is the pain. Is it when you breath? Do you have a caugh? Feel raspy? Any signs of infections such as sore throat, runny nose, fever?

I started loosing the hair after the 3rd treatment! It slowly started coming out, nothing durastic but after the 4th treatment started coming out a bit more so I decided to shave it to make cleanup a bit easier. For me, it only fell out on the right side of my head. Weird huh! So I kept the left side of my head shaved and wore wigs and hats, Lots of fun :)! Since it is summer and if yu do have to wear wigs, I would deffinaly look into a head cooler to put under the wig. Here in NC we can have some brutal summers (over 100) and couldnt imagine a wig in that weather.
Amy
Lupus Moderater
Cyclosporine, Prednisone, Lisinopril,Norvasc, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

Robyn10217
Regular Member


Date Joined Nov 2010
Total Posts : 41
   Posted 5/19/2011 5:15 PM (GMT -6)   
well I just had my labs done and they all look really good. I have my next treatment on the 26th. no signs of infections but I have been fighting some heart stuff and its hard to determine what is heart and side effects. Well I feel better knowing what I will be looking for, understanding a little better. Thank you for all your help. Also during the summer is it an issue to be in the sun, I mean I know we should limit our sun exposure but if its beautiful outside I'm gonna be out there. lol and with the chemo did you notice sleep difficulty?
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Pericarditis,Migranes
AVR & Tricuspid Repair, Paricardictamy 2008

Imuran,Coumadin,Topamax,colchincine,Wellbutrin, Prednisone
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