Hi all! I was diagnosed with MCTD a couple of months ago. I had been diagnosed with Sjogren's Syndrome in 2009, but I knew that wasn't the entire problem. I don't completely know what to expect from MCTD in the future, but I'm trying to educate myself about it. Knowledge is power, right? I haven't had any major problems in a few years, but I'm starting to have a flare- the worst I've had since high school. I'm not on any meds right now because my doctor feels that my condition is mild enough that I don't require them. I'm happy with this idea because I'd like to avoid meds for as long as possible. However, I'm trying to get a hold of him to see if I need to be on something to get this flare under control.
I'm really glad I found this site =] It's nice to find people who understand what you're going through. My dad and brother are starting to come around to the fact that it's not all in my head. I've come to the realization that I can't talk to my friends about it. My mom has basically become the only person I can talk to. She's a nurse and has had health problems too, so she's pretty understanding when I come to her about a possible new symptom or other concerns. But it would be nice to have others' inputs as well. Thanks for taking the time to read my post.
Hugs and best wishes <3