So sad and discouraged and in PAIN

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Regular Member

Date Joined Feb 2011
Total Posts : 58
   Posted 5/17/2011 1:34 PM (GMT -6)   
Hello to all.
I have been away from the site for a while and am glad to be back
I am so down right now and hoping others can bring me some hope!
My mother passed away this past Saturday and I seem to be going through
more of a flare right now. Last night I woke up in excruciating pain in my elbows and the muscles
and tendons surrounding them. I could not get comfortable.
I have been on Plaquinel for a few months now but have not noticed a great deal of improvement so far.
I am seeing an orthopedic dr next Thurs. I am hopeful that he can come up with something for me!
I need relief!!!
Any suggestions would be greatly appreciated!!!!!
Thank you all so much!

New Member

Date Joined May 2011
Total Posts : 14
   Posted 5/17/2011 6:28 PM (GMT -6)   
I'm so sorry for your loss :(

I don't know much of anything right now because I'm in the limbo phase. I just wanted to express my condolences.

Regular Member

Date Joined Apr 2009
Total Posts : 122
   Posted 5/17/2011 6:56 PM (GMT -6)   
I'm sooooo sorry for the loss of your mother.  Sometimes it seems when we are under alot of stress we will go into flares.  You didn't list any other medications that you are taking, but don't give up hope on the plaquenil.  It works differently for everyone and sometimes it takes some of us a little longer to get results.  In the meantime you need to talk to your rhuemy about the pain that you are in and see if you can get some meds for that.  I currently take Tramadol for pain management and it seems to help considerably.  I also take Etolodac for inflammation and that also helps alot.  If your joints are inflamed, you will hurt.  It's hard enough going through the loss of your mom, but to not feel well on top of it must be devastating for you.  I hope you get some answers soon.
Hugs and Angels,
DX - sle and carpal tunnel syndrome
RX - plaquenil, prednisone, etolodac, lisiniprol, tramadol, flexeril when needed, hormones and lots of daily vitamins.

Regular Member

Date Joined Feb 2011
Total Posts : 58
   Posted 5/20/2011 8:20 AM (GMT -6)   
First off... Thank you both for your replies and condolences! I think the stress is a big factor with the flare issue. Last night was aweful and my mom's funeral was yesterday. I am currently taking plaquenil, mobic, tramadol and a vitamin with folic acid, B6 and B 12 in it. I haven't noticed a whole lot of relief so far but I have had much better days! Usually most of my pain is in my right arm at the elbow but it is starting to affect other parts of my body. My left arm, my neck, knees, back and wrists. I hope to get to feeling better soon! How darn long do flares last? I have been having trouble with this elbow for months now!
Anyway... Thank you both for your kind words! I hope today finds you both feeling great!

Connective Tissue Disease and Fibromyalgia.

Meds include; Mobic, Plaquenil, Tramadol, Prevacid, OTC Sleep Aid.

Regular Member

Date Joined Oct 2010
Total Posts : 183
   Posted 5/24/2011 7:50 PM (GMT -6)   
I am sorry for your loss. This must be so hard for you and your family. God be w/ you and may he give you the strength and hope for things to become better for you.

New Member

Date Joined Feb 2010
Total Posts : 12
   Posted 5/25/2011 6:30 PM (GMT -6)   
I am so so so sorry for your loss -- I lost my dad not long ago myself and my mom in 1987 -- so I know all the things that have been going on for me physically are probably a good deal of emotional that has brought on physical. I am having optic/visual issues -- it seems to be attacking the optic nerve of my right eye. I have been trying to get past the fatigue that is just so overwhelming to me along with the the migraine in the right eye/head and neuropathy, hot flashes that feel like someone is holding a candle over my skin (I had to have a total hysterectomy at 36)...and I have come to the conclusion -- along with my physician -- that losing my dad & having my sister and her family have to move to Alabama all at the same time has brought all of this to the point I am at. I literally cannot get through an entire day as I begin to feel so weak and tired it almost makes me sick. My appetite is gone, my heart aches & I miss him -- as you will feel as you go through this grieving process. Its hard -- it feels like you are so alone and then the physical that is manifested from all the emotional does not help at all.

I have begun to do this ritual -- I have this beautiful glass tart burner from Yankee Candle -- and I put in a lavendar tart. Its painted glass with butterflies and its beautiful. The top of this is a dish where the tart goes so when you put your tea candle inside this, you get this amazing lavendar scent for hours. I have put this next to my bed and I go into my room (some nights at 6 or 6:30) and I light my tart burner and I put on a movie that is on my iPad or Pandora piano and I let the scent and the peace just flow over me. The meds help some things but there isn't anything for a broken heart -- so I am hoping that you can find something like I have that feels like a hug when I feel so alone and in so much pain/discomfort. There are no words for how much I am so sorry for all you are dealing with....and tonight when I light my tart, I will think of you and ask for angels to come be with you.
A smile means everything to the one who receives it.

Lupus SLE, Bi-Polar (diag 2001)
Drugs: Plaquenil, Propranolol, Xanax, Prednisone, Lamictal, Synthroid
OTC/Natureopathic: Bayer Aspirin, Advil, Omega3, B-complex, C, Acidolphulus, Calcium (magnesium & zinc), Vitamin D drops and Juice-PLUS

Regular Member

Date Joined Mar 2009
Total Posts : 98
   Posted 5/26/2011 10:19 AM (GMT -6)   
I'm so sorry for your loss, I became terribly sick when my mom died of cepsis. Stress is a terrible trigger for Lupus. I have been off the forum for awhile too and am back on. I hope you can get some relief from the pain. nsaids have been a tremendous help to me for years. i am on many kinds of pain meds that are not narcotics and they help. Hang in there!SLEEP
A life watered by tears of tragedy and suffering are sometimes the most fertile soil for spiritual growth.

Plaquinil, lodine, skelaxin, lyrica, cymbalta, 50,000 IU vit.D, prednisone

panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 5/27/2011 7:41 PM (GMT -6)   
Hi Rhondamac... I haven't been on in awhile either. Sorry to hear about your mom. Your rheumatologist should put you on a medrol pack or something as stress=flare
hope you are feeling better soon.

Regular Member

Date Joined Mar 2011
Total Posts : 129
   Posted 6/1/2011 8:57 AM (GMT -6)   
Hi Rhondamac! I also haven't been on here in a couple weeks, but I just wanted to tell you I am SO sorry for the loss of your mother and want to send some real gentle (((HUGS)))!!!

I have had similar pain issues and found a drug called Neurontin to be extremely helpful to me (I am now prescribed it 3 times a day although I have only managed to take it morning and night still because it also makes me pretty sleepy). It has helped tremendously with the pain although I also still need tramadol and steroids to give me any real relief with it.

The combination though helps me tremendously (as in I can't get out of bed without the steroids, I am in a lot of pain without the neurontin), but the combo of those three has worked wonders for me! I have even been taking my little one year old swimming lately and cleaning house.

I think that stress really brings on flares or more pain badly, and I can imagine this is a very difficult time for you. I want you to know that I really care and think about you and although we have never "met" that there are a lot of us out here that really DO care and I am so sorry that you are going through SO much right now!!!

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