How long does a Lupus tast takes?

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Regular Member

Date Joined Jun 2009
Total Posts : 67
   Posted 5/27/2011 1:06 AM (GMT -6)   
First of all, I posted this post in my Crohn's forum first, but then was suggested it better if I post it here. Sorry if I just posted the exact post. So here we go:

I hate to sound paranoid, but I read an article of the Lupus illness and I fear I might have it. I have a small, red rash in my face and noise like the butterfly shape. and I've been feeling tired and weak all the time, been then again I should feel tired and weak or fatigue because I already have Crohn's and HCV (thou HCV is still early so I don't think it's giving much issue, but the meds do make me tired) and I've cached this could and it's taking forever to go away from me, mostly because my immune system is weak since I take Humira and now I fear it's partly because of the Lupus.

I'm really sick and tired of trusting doctors who don't know jack, it's just I want to be safe then sorry. I know there is tests to show indications but not clear sign of Lupus, well that's the thing, I already have these indications like tiredness/fatigue and the rash, not to mention a weak immune system. But the cause of them can be other then Lupus, but how can I know it's certainly not Lupus? And how long does the results take?

Half my worry is not just he Lupus, but my doctor, sometimes he can be a bit stubborn in his opinions so I'm worried also about him trying to explain my doubts.

Thanks for your time, and sorry for sounding like a cry-baby. I'm just so tired, and don't have anyone to talk about my worries so pleas try to understand me.

AZ N8ive
New Member

Date Joined May 2011
Total Posts : 11
   Posted 5/27/2011 7:19 AM (GMT -6)   
Humira, and other meds in tthe same category, can cause a"lupus-like syndromee." I would suggest you contact the pharmacy that shipped the humira or contact the humira help line. I found both of these resources very helpful and they don't charge and in no hurry!
It will get better.

Regular Member

Date Joined Mar 2009
Total Posts : 98
   Posted 5/27/2011 7:27 AM (GMT -6)   
Hi Mr X, Im sorry you are feeling so poorly. Feeling weakened and vulnerable is one of the hardest places to be. I will try to remember what i can about my testing time. I was sick off and on for years and then during an extremely stressful time the symptoms went wild. I had many organs and systems hit and then was sent to see a rhumey. Blood work and urine tests were done and within a few days I was put on several meds. Some of the the tests came back quickly and others we waited for. My ANA and inflamation markers change and so it was mainly my symptoms and history that led my rhumey to start treatment. The meds were a gift from God as I got my life back. Today I am not doing so well as my bloodwork is crappy and my new meds are making me so tired. You are in my thoughts. Never lose hope. :-)

Regular Member

Date Joined Jun 2009
Total Posts : 67
   Posted 5/27/2011 4:37 PM (GMT -6)   
@ Ann: I'll try to contact them or my doctor (he know one of the people who work in the company) thanks.

@ Loved: I'm so sorry you feel that way :( my meds for HCV are giving me a hard time as well so I know what you mean. But as you said, never lose hope. Thanks dear and I hope you'll get better and everyone here will get better.

Regular Member

Date Joined Mar 2011
Total Posts : 27
   Posted 5/27/2011 5:15 PM (GMT -6)   
Mr. X,  I have Crohn's also.  Long story short recently I thought that I might have Rheumatiod Arthritis and so I pushed for an appointment with a Rhuematologist.  She was six weeks out but I finally got in.  Based on my symptoms she thought for sure that it was RA.  She ordered some bloodwork to make sure.  It took about a week for the test results to come back.  The CCP and RF (markers for RA) were negative but my ANA was positive which lead to the Lupus diagnosis.  I am on remicade so I thought that maybe there was a chance that it was drug induced lupus but based on my bloodwork and the fact that my joint pain got better after my remicade treatment my GI and my Rhuematologist both felt that it was not a drug induced lupus.  
I want to encourage you to be your own advocate.  If you feel like something is not right get it checked out and keep going until you feel like you are being listened to.  I can completely understand the worry about having your doctor not listen or dismiss your symptoms.  Hang in there!  

Diagnosed in March 2001 with Crohns disease, resection in August 2001
Diagnosed with Lupus in April 2011
Currently on Remicade, Pentasa, Prenatal vitamin, 5 mg prednisone, and methotrexate
Have been on Cipro, Imuran, Asacol, 6mp, and prednisone (for whenever a bad one comes along)

panther fern
Regular Member

Date Joined Feb 2011
Total Posts : 163
   Posted 5/27/2011 7:28 PM (GMT -6)   
I use a biologic infusion or my rheumy does ... Orencia. and a friend that has lupus uses a biologic remicade. I notice a huge difference when it is time for my infusion. about 3-4 days before my lupus starts to act up. I use methotrexate as well...killer on my liver but with orencia it is great.

Feeling crappy sucks. Hope you are feeling better soon.

lupus doesnt' always show in blood work it took a while to diagnos me but... i have a few conditions.

Take care... fern
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