Working and Lupus

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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/27/2011 9:47 AM (GMT -6)   
I was wondering how long before you had to quit your working hours after you got your diagnosis? 
Also if you are still working do you do reduced hours? Are any of you on SSD or LTD? confused
 
I'd like to know the average length of time it took before Lupus symptoms began to hamper working in the public setting.
 
I'm a first grade teacher and I'm already seeing that the pains, forgetfullness, and fatigue spells are beginning to affect my work. smhair I'm not on medication yet. The doctor won't start it until he gets all of my bloodwork back. nono
Joy

LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 5/27/2011 11:59 AM (GMT -6)   
Hi Couchtater, I was diagnosed @ 6 yrs ago I believe. I am on FML which is wonderful. I am a mobile psychiatric rehabilitation specialist and I am on the road in UV most of the day. I am so very tired and my coworkers make jokes about my forgetfulness. I am a lot of meds now and they help.  There are wonderful meds out there that are not narcotics, to manage the pain. Thus far I have not had to use any FML days or my short term disability. I slather in sunscreen, take my meds, sleep as much as possible and make it through another day. Lately muscle spasms have been a bugger and meds make me tired. My boss is kind and can see when I am getting sick, so she encourages me to take a day off to rest. I am very fortunate. Bless you as you work with kids who are very exhausting(grin). smilewinkgrin

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 5/28/2011 5:40 PM (GMT -6)   
Hi!
I was diagnosed in 2005 and had to stop working last June. I was teaching CNA and Health Occupations to 11th and 12th graders and LOVED my job. The last year was the toughest and don't know how I got through it. I couldn't think straight, multitask, walk or sleep, my nerves were screaming and I was literally crawling out of bed to go to work and falling out of the shower into bed after work. I had to decide that my health and family had to be my priority and I could no longer do my job. My best was no longer good enough. The SSD and my teacher retirement paperwork was tough, but the folks at my local SSA office were wonderful and helpful. I printed off a slopppy copy, 24 pages, and it took me 3 weeks to finish it, and another to copy it over. The website is really user friendly. My 3 drs. and my acupuncturist faxed their medical forms back promptly, within less than a month.  It took only 2 months, 3 weeks and a day for my SSD to be approved, and there is a 5 month waiting period before benefits start. I was able to see the SSA physician in 2 months because they had a cancellation. It took 7 months for my teacher disability/retirement to be approved because there was a backlog and wait for a required transfer of service form from NYS to NYSTRS. My staff nurse state pension years were added into my teacher retirement because the two pension systems are sister systems. My first SSD check started in Jan. and my NYSTRS in Feb.  My meds help alot, but I hate living on prednisone.
Good luck,
suetoo

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/30/2011 9:33 AM (GMT -6)   
Wow, Suetoo!
I've got LTD set up to start three months after any disability claim starts. I've got at the present 58 sick days in my bank that I can take at the beginning. I also have TRS and can do SSD when the time comes. I pray this enough for everything.
Joy
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