I finally saw my rheumatologist on thursday. When I got there, he told my me primary doctor hadn't faxed them my medical records, so he had nothing to go on as far as trying to come up with what to test me for. I started crying in the room because it was so frustrating. He decided to just run everything again so we could find out what's wrong and even see if something was missed in my previous blood tests.
He took my blood pressure which was higher than average, and did some exams. I have had eczema for most of my life, and i have it very badly on my arms right now, and on my eyelids. But he noticed my face was very red, and there was rashes on my face that didn't look like eczema to him. So he took 8 vials of blood from me. a basic hematocrit test, a test for lupus, crohn's disease, thyroid issues, lyme disease and a couple of other things.
I'm noticing now that it's getting hotter outside, my face is getting redder and redder, and my face starts to burn more, and my headaches are getting worse. I recently just got a job, and I am only 20, I have no car or license, so I have to take the bus to work. I have to walk 10-15 minutes to the bus stop to go to work, and after that 15 minutes I feel like I'm going to keel over and die once I am on the bus not walking any more. My head just starts to get hot and my face burns and I sweat like I had just gotten done running a marathon.
I just got a job, and I haven't told them I was sick. I'm training right now as a cashier, part time, I wanted part time because I don't feel physically able to work 40 hours a week. I have to pay back my college because I left when I got sick, support myself through a crazy financial mess, and get a license and a car. I'm trying to focus on the positive things and try to be normal but its so hard. sometimes in the back of my mind since nobody knows what's wrong with me i feel like I;m gunna die in the near or distant future. my face is always red, and I am always sweaty so i always feel like people are gunna be judging me and all kinds of stuff. i haven;t told them i'm sick yet because nobody knows what it is. and i didn't want them to not hire me. tomorrow I have to tell them about doctors apointments i've had for months and I have 3 within the next couple weeks. so i feel like i have to at least tell them something but I feel like i'll get fired if i tell them.