I'm scared I wont be taken seriously?

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paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 6/6/2011 5:51 AM (GMT -6)   
I'm a 21 year old female and I have a long history of medical problems.. (asthma, Celiac Disease, mono in 2005 & 2010 and I was sick for years after the first one, DX with Fibromyalgia, Chronic Fatigue Syndrome and IBS, had my appendix removed, I always get colds, flu and infections, got H1N1, endometriosis, Raynaud's...)

In the past 8 months I have developed new symptoms..
Knee pain, they get red and hot, swollen and when I walk it feels like they grind and like there's a bubble in my knee. Stiff in the mornings
Finger pain (first two fingers next to thumb, worst on my left hand are the worst) swollen, red, hot, stiff in the mornings.
Dry eyes and mouth.
Raynaud's and fatigue have gotten worse.
Nose ulcers.
A few odd rashes that pop up on my elbow, chest and face (they're pink, raised, aren't itchy and don't scar).

I've had the following blood tests done-
ANA- positive 1:80 speckled.
Sed Rate- slightly elevated.
CRP- normal
CBC- normal
Rheumatoid Factor- normal
anti-CCP- normal.
X-rays of my fingers and knees- normal.

My doctor put me on a month course of Prednisone (starting at 20mg, reduce by 5mg a week) which helped a lot! I had a rash on my elbow that went away, the doctor said my eyes didn't look so red (but they still feel dry to me) but mostly, my joints felt brand new! The swelling has gone, my joints aren't red and hot and they don't hurt (however I'm now down to 10mg and I don't feel as good as the 20mg)

I'm seeing a rheumatologist on the 30th June.

I'm just worried because so far my blood tests have shown very little and my ANA titer is so weak, I feel I'll be ignored

Has anyone been taken seriously with little positive blood work?
Thanks.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 6/6/2011 9:14 AM (GMT -6)   
May of us have been fully diagnosed without a positive ANA. Lupus is not easily diagnosed, as there are NO tests that say definitely "this is lupus". Instead there is the "4 of 11" rule, where 4 symptoms (and a qualified rhemuy) are enough for a diagnosis.

And, many of us have been successfully treated without a diagnosis! Reducing the symptoms is often more important than getting them named.

Checkout the 'diagnosis' link in my signature,
Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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