Saw the Rhuemy- got my diagnosis

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couchtater
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Date Joined Jul 2009
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   Posted 6/8/2011 4:54 PM (GMT -6)   
He told me my inflamatory markers were normal, but since I had many of the indicators for Lupus he believed that I had a very mild case of Lupus.
I'm now on Planquil and Meloxicam. smhair
 
I see him in two months to tell him how I'm doing.
 
I took the general advice I've heard on here and am taking 800mcg of folic acid, too.
 
Any other tips out there?
Joy

aimsgirl16
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Date Joined Jun 2008
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   Posted 6/9/2011 4:53 AM (GMT -6)   
Jus make sure with the meloxicam you eat before taking it. It really can upset your stomach if you don't. As far as joint pain, the meloxicam has been my best friend. Just remember they both can take awhile to work so if you do'nt feel any relief in a week or two, give it some more time!!

Good Luck :)
Amy
Lupus Moderater
Cyclosporine, Prednisone, Lisinopril,Norvasc, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 6/9/2011 9:09 AM (GMT -6)   
My pain is very random some days are worse and some days I can tolerate the pain and not need the pain medicine. Is it okay to just take the meloxicam when I hurt bad? Or do I need to take it regularly to stay ahead of the flares?

Another thing I've noticed I've start getting headaches. I don't get headaches. Is this normal?
Joy

mscrowbar
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Date Joined Nov 2010
Total Posts : 877
   Posted 6/9/2011 3:06 PM (GMT -6)   
I cannot speak for the planquil but I can for the meloxicam.

I would not use meloxicam as a "whenever" needed med. It is designed to be taken once a day and will release slowly to give you relief on a continual basis.

My ortho doc gave it to me because I was needing too many ibuprophen to get any relief and it was tearing up my stomach. Now I take one meloxicam every morning with breakfast.

Meloxicam helps with inflamation, arthritis and bursitis. When I take it on a regular basis my hips do not get me up in the wee hours of the morning and my knees don't constantly ache.


I cannot say that this could be what is causing your headaches because I don't get them. I do get sinus type pressure and light headedness but I think that is from the weather (my daughter and grandsons are all suffering too).
Denita
***************************************

Fibromyalgia. Arthritis/bursitis/meniscus tears in both knees.
Cancer survivor

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 6/9/2011 4:21 PM (GMT -6)   
My headaches started four days before I started on any medicine for this. They get a little worse everyday. I gave in today and started the mobic when the headache hit at 12:00. about 30 minutes later I had a sudden attack of "Blowout D" (sorry TMI). I figure it was from my system getting used to the mobic. I hope it will not be a daily thing. :-(
Joy

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 6/12/2011 5:12 PM (GMT -6)   
Remember, som e meds are better WITH food in the stomach and some are better WITHOUT food in the stomach - read the fine print to see whcih you are taking. Alos some meds need to be taken alone, not with other meds.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 6/12/2011 6:44 PM (GMT -6)   
Both say it's okay with a snack or small meal. Also they both say drink a full glass of water with them.
Joy

jeanneac
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Date Joined Feb 2009
Total Posts : 1914
   Posted 6/14/2011 8:31 AM (GMT -6)   
couchtater, what were some of your symptoms if you don't mind me asking?? Do you have inflammatory bowel disease? I thought I've seen you on one of those sites cause I hang out there too. I am in a similar dilemma, I take plaquenil which took 3 months to get any results with but I feel like I am backsliding. My rheumy wants tme to take advil and my GI told me to avoid it. Grrrr!!!!! It is frustrating and I just want to feel normal.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, IBS, Colon resection Nov. 2010, now in remission
inflammator arthritis, ??Overlap or mctd, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, prozac, synthroid, cozar, advair, plaquenil
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern 1:180, high sed rate

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/14/2011 12:13 PM (GMT -6)   
Constant pain in my hands and tops of my feet
palms of my hands turning brick red with white spots
feet turning purplish
pains in my knees and elbows
back spasms (I have degenerative disk and facet disease)
swollen glands in my neck
attacks of extreme fatigue
painful headaches
tender spots on my arms and legs
a freaky red spotted rash on my face
I am prone to constipation due to my low thyroid levels.
Joy

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 6/15/2011 7:39 PM (GMT -6)   
Bless your heart, those symptoms sound really miserable-:) I wonder if you have some fibromyalgia on top of the lupus giving you some of the pains? Just a thought. Gosh, I hope you get some results from your meds soon. Plaquenil takes 3 months to get to full strength according to my doc. I think some people get results a little sooner.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, IBS, Colon resection Nov. 2010, now in remission
inflammator arthritis, ??Overlap or mctd, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, prozac, synthroid, cozar, advair, plaquenil
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern 1:180, high sed rate

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/15/2011 8:09 PM (GMT -6)   
I might, who knows? This all so new to me....
Joy

jeanneac
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Date Joined Feb 2009
Total Posts : 1914
   Posted 6/17/2011 1:37 PM (GMT -6)   
Joy, I hope the meds help your symptoms! Sounds like you could use a break. That's a lot of strange stuff happening. I can sympathize. Sounds like you have a doctor who is at least willing to listen and help you out with your symptoms.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, IBS, Colon resection Nov. 2010, now in remission
inflammator arthritis, ??Overlap or mctd, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, prozac, synthroid, cozar, advair, plaquenil
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern 1:180, high sed rate

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/17/2011 2:53 PM (GMT -6)   
Today I went outside for about 30 mins and came back in with a hot red rash on my face. I felt very drained, too.
I'm worried about being able to go outside this fall with my class for their recess time. Since there's 24 florecent lights above my head in the classroom I'm thinking about buying camping lanterns to place in the middle of the groups to light their work areas. I have two regular size windows to the outside and four long narrow windows facing the hallway for light to come in. I believe this will be enough light for them to see along with the light from the promethain board and projector.
I'll have to explain to the parents about the dimmer lighting.
Joy

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 6/17/2011 3:10 PM (GMT -6)   
If these are the long tubular florescents, there is a plastic cover over the bulb itself. Special versions of the cover can be purchased to help keep the offending (uv?) light from affecting you and no one will even notice.

Other lupies have found their employers will pay for it under the "Americans with disabilities act."
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/17/2011 3:29 PM (GMT -6)   
Hmmmmmm....
I didn't know there was such a thing. Do you know what's the name of the covers?
It's recessed lighting in the long tubes with covers.
Joy

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 6/17/2011 3:42 PM (GMT -6)   
No, I don't know the name. Just that someone on here referred to them once. Maybe search the web for florescent UV covers, allergy to florescent, that kind of thing? Sensitive to florescent?
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/17/2011 5:20 PM (GMT -6)   
Did a search...Found it only one place and it was expensive. :(
My school system is having a lot of trouble with the budget. They won't be able to buy them.
I did find inexpensive floor lamps with five "medusa" heads. If I place them carefully around the room maybe it will work. I hope..
Joy
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