Hospital 4 months

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Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/13/2011 7:20 PM (GMT -6)   
Hi Everyone. Not sure who remembers me. I quit writing when I had gastric bypass surgery Nov 2010. Surgery didn't go well and my stomach closed not letting anything pass. January I went back in the hospital and while there went into acute respiratory distress, rushed to ICU, induced into a coma, placed on a vent for 2 weeks and when they stopped the coma meds I didn't wake up. I was sent to a long term acute care facility. Family & staff said my eyes were open, but no one was home. I'm told my eyes started following, then hands moved, and eventually conversations, but the first day I remember is March 30. I was relased April 14, so I was in the hospital 4 months and a coma for 2 months. Interestingly, I only have 5-6 flashes of memory from Jan-March. I had home care physical therapy for 6 weeks and I continue to have weekly nursing care to change dressings and draw blood.
 
I can't eat and I'm getting endoscopies every 2 weeks to open a hole in my stomach. I have liquid food pumped thru my veins 10 hours each day as well as cellcept, solumedrol, and a few other drugs. My devoted BF helps me set up this mess every day and my daughter drives me to medical appointments. I'm greatful to them and also to Lynnwood who took me to an appointment when my daughter couldn't, even though Lynnwood was in a flare.  Anyway, that's how I spent my Spring. I sincerely hope all of you are doing well. Love, Butterflake...Donna

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 6/13/2011 8:02 PM (GMT -6)   
Hello! I am so happy to hear from you! You have been in my prayers daily. Lynnwood was kind enough to keep us updated on your progress. You have been through such an ordeal. I am glad that you have a family support group. That can and does make such a difference. May you continue to have nothing but good days!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 6/13/2011 8:03 PM (GMT -6)   
Aw, my flares are nothing compared to what many of you go thru on a daily basis.

I am SO GLAD to see you back online, Donna!! Yay! yeah yeah yeah turn
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 6/14/2011 5:14 AM (GMT -6)   
aw, Donna...this post has made my day. I was so worried about you. There was a post awhile ago letting us know what had happened and lots of people were praying for ya. So glad you are now home and feeling well enough to post. I pray you continue to feel better!!
Amy
Lupus Moderater
Cyclosporine, Prednisone, Lisinopril,Norvasc, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/14/2011 1:59 PM (GMT -6)   
Thanks so much Ladies. I went to my neurologist today. Most of the skin on my left arm is numb from my elbow to fingers as a result of pinched nerves during my coma. Doc's going to run tests, but he thinks it's permanent. I'm getting used to it. On the other hand, not eating food for 5 months is really a female dog. But hey, I'm here and Lord willing I'll eat eventually. Love, Butterflake

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 6/14/2011 4:17 PM (GMT -6)   
Butterflake, I consider myself very fortunate that I only have malabsorbtion issues that are a result of that surgery. I am so sorry that you have had all those medical problems.

I had my surgery about 9 years ago. I lost 160 lbs and since then have gained about half that back. The malasorbtion issues, the meds and all the aches and pains are the reason why.That and the fact that for a long time I let the surgery itself do all the work and I did nothing along with it to make sure I would continue to lose and keep it off. I would do it again but with more knowledge and more determination.

I know that you have a long way to go before you get where I am but just make sure the doctors keep up with your blood work. Iron, Vitamin D, calcium and B-12 deficiencies are issues that arise many years after that surgery.

If you ever have any questions please feel free to ask. I will help in any way I can.
Denita
***************************************

Fibromyalgia. Arthritis/bursitis/meniscus tears in both knees.
Cancer survivor

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 185
   Posted 6/16/2011 3:32 PM (GMT -6)   
Hello Butterflake... I am so glad to see your post... I have thought about you many times... wishing and hoping your were doing better.... take care... and thinking of you....

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/17/2011 11:34 AM (GMT -6)   
Thanks for the good words Weleetka and Denita, I really appreciate the heads up. Now my food (TPN) is infused and I occaisionally try to eat soft cereal and drink juice, but I often get dumping syndrome (barfing with lots of pain) because the outlet from my stomach is still too small. My dietician and pharmacist adjust my TPN according to my blood work. Well, I gotta go. Thanks again Denita. Love, Butterflake...Donna
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