labrythtitus to lupus???

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Jun 2011
Total Posts : 3
   Posted 6/23/2011 12:12 PM (GMT -6)   
It first began in late April, I had the flu and was stuck in bed for three days,

2 weeks later I had a big night out with friend’s lots of beer shots etc

the next morning I was hung over by the afternoon I was fine.

That night I went shopping at supermarket and out of no where I had a drop attack felt like I was about to faint. I dropped my groceries and sat down, my palms were sweating and I felt like everything was spinning, after 10 minutes I stood up and walked home. At home I proceeded to throw up for 7 hours. The next morning I went to work everything stated spinning I felt very disorientated threw up then got sent home and slept for 20 hours straight.

A few days later I went to see the GP he wasn’t sure what the problem was
He gave me a injection of anti nausea liquid and said I should be fine in a few days.

A week later I had another dizzy spell threw up a few times then my ears started to ring like crazy

I went to another GP the following day and she diagnosed me with

Labrythtitus and prescribed me pro calm and said I should be better within 1 to 3 weeks

2 days later the ringing in my ears got worse so I went to visit the ear and eye hospital. They did various tests. He wasn’t convinced it was Labrythtitus and booked me in for further tests for next month. He prescribed me stemitel.

A week later I visited family interstate, while out for breakfast I had another attack, felt dizzy threw up then slept for 20 hours.

I visited a GP in Canberra and she agreed with my first GP and said it was Labrythtitus and prescribed me stemitel

I was in bed for a week feeling awful.

Back in Melbourne still feeling awful I went to see another gp

He got me to do a few blood tests and sent me for ct scan.

Ct scan came back fine blood test came back with slightly elevated hemoglobin 18.1

He referred me to a blood specialist

Next week I went to my ENT specialist appointment.

I came out with none to minimal hearing loss with tinnitus

They booked me in for an MRI scan and further balance and hearing tests.

Next week I went to hospital and was diagnosed with epididymitis

Had to go back 3 consecutive times for antibiotic injections

The infection went away! Had a follow up with my gp for a few extra antibiotic tablets

Now into early july. 2 and a half months since my first attack.

I came to work feeling dizzy again and went to the hospital.

They done various tests. He wasn’t sure what is was but said I was experiencing anxiety. He tested my blood showing my hemoglobin down to 17

and said my GP was wrong and shouldn’t have booked me into see a blood specialist. he booked me into see a neurologist. And prescribed me metaclopramide and alprazolam.

I went to see the blood specialist a week later

My hemoglobin was in normal range 16 I think but my detected speckled titre was 1:640 sle above 1:320

The specialist diagnosed me with lupus

And prescribed me with asprin and prednisolone .

And told me to call in a few days to see how I was going.

I had I slight dizzness attack last night and had to lye down for 30 mins

I stopped taking prednisolone after reading about it it doesnt seem like it will help me in the long run

My Current symptoms

Dizziness nausea on occasions

Sweaty palms and disorientation on occasions

Tinnitus and blocked ears

Anxiety and depression

Lethargic and fatigued.

pins and needles and tired legs

None of the general practitioners or specialists seem to agree on anything

Saying that each other has a the wrong diagnosis. What is my diagnosis?

Im not sure who to believe??

Very confusing

please help

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/23/2011 12:21 PM (GMT -6)   
With a high ANA there's a good chance of you having an autoimmune disease. Now which one I can't say...
Have you seen a rheumatologist? He can tell you definately which one you have and get you on the right track.

New Member

Date Joined Jun 2011
Total Posts : 3
   Posted 6/23/2011 9:51 PM (GMT -6)   
Hi Coucthtater. thanks for the reply. im currently seeing a Oncologist/clinical haematologist . prescribed me with asprin and prednisolone and told me i have lupus. gave me a print out to read. i read it and didn't seem to have barely any of the symtoms. ill ask my gp to book me into a rheumatologist

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/23/2011 10:16 PM (GMT -6)   
If you have at least four things on the list it's a yes.

I was just told two weeks ago I had lupus and I just have 4 markers from the list.

Regular Member

Date Joined May 2011
Total Posts : 34
   Posted 6/24/2011 2:12 AM (GMT -6)   
Doesn't really sound like lupus but there is something called "autoimmune ear". My wife is having a major problem with vertigo and it's maybe more debilitating than the usual lupus symptoms. For my wife, seems nothing helps.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 9:12 PM (GMT -6)
There are a total of 3,005,294 posts in 329,211 threads.
View Active Threads

Who's Online
This forum has 161767 registered members. Please welcome our newest member, Titanium-Girl.
297 Guest(s), 10 Registered Member(s) are currently online.  Details
OzLyme, GoBucks, Vdang2k, IamCurious, pasayten, nguoivotinh1, Girlie, savena, Roadranger82, iPoop