10 yr old daughter with high ANA titer

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muffinmama
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/24/2011 9:12 AM (GMT -6)   
Hello all,
My 10 year old daughter has been experiencing symptoms (headaches, persistent low grade fevers, fainting) since October of last year. She has continuously shown very high eosinophil counts. This led the doctors to do a bone marrow test, which came back clear. She recently had an ANA titer done and her result was 1:1280. She just had auto immune testing and everything came back normal except for her ferritin level being low.
I am kind of feeling like we are at a stand still on getting her diagnosed and feeling better. Is this result consistent with Lupus? Anyone have any clue what should be done next? I am currently having her seen by a hematologist at TX Childrens Hospital who is consulting with a Rheumatologist there.
Thanks in advance for your help!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/24/2011 12:02 PM (GMT -6)   
The high titers rate sure sounds like an autoimmune disease.
Even though my inflamatory rates are low, because I have a high ANA the doctor told me I had lupus.

I hope she feels better soon.
Joy

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 6/24/2011 12:28 PM (GMT -6)   
A high ANA generally means some sort of inflammatory disorder, but there are several besides Lupus that fall in that category. They are often distinguishable only by symptoms, and often the treatment is close to the same.

These kinds of illnesses are generally diagnosed by rheumatologists, so the consult is a great idea.

You might want to look at the 11 symptoms that help diagnose lupus, as found on the lupus org website (first link in my signature). A 10-yr old might have symptoms that she doesn't realize are symptoms, so you may need to ask more questions about how she feels to gather enough symptoms for diagnosis.

Hope she feels better soon,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

muffinmama
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/25/2011 8:51 AM (GMT -6)   
Thank you for your response. She does show these symptoms from the list you referred me to:
extreme fatigue (tiredness)
headaches
painful or swollen joints
fever
anemia (low numbers of red blood cells or hemoglobin, or low total blood volume)
hair loss

Do you have any idea what other tests could be done with the Rheumatologist to confirm what type of autoimmune issue she is having?

Thanks.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/25/2011 9:02 PM (GMT -6)   
The website for the lupus foundation has a list of the tests they usually do.
These are the ones my rhuemy did on me:
urinalysis
rhueumatoid A QL/QN
sed rate
CRP
CCP
DNA
ENA
Lupus anticoagulant comprehension
beta 2
glycoprotien Ab Iga Igm
cardiolipin Ab Iga Igg Igm
c3, c4

There's others he may do, but I believe these are the basics.
Joy
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