What do you do to help your Raynaud's?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/26/2011 2:06 PM (GMT -6)   
I've been having a lot of pain with my Raynaud's in my hands and feet lately. cry cry
 
These last few days I've been flaring thanks to too much activity and sun. rolleyes
 
I've been on mobic and planquenil for almost three weeks, but it's not helping right now. mad
 
What I want to know is what do you do when your Raynaud's is flaring? smhair smhair
 
Do I do heat? Cold? Exercises? confused
 
Also my head is pounding right now. Any tips on this, too? confused
Joy

Post Edited (couchtater) : 6/26/2011 8:03:28 PM (GMT-6)


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 6/26/2011 8:20 PM (GMT -6)   
There are the obvious things you can do to alleviate raynauds by using gloves and dressing warmer in general.  Don't neglect your core because that will determine how much blood goes to your extremities.  For more severe cases there are several different meds that can help.  My case was pretty bad but I have been in remission (lupus and polymyositis) for over 5 years and my secondary raynauds has gotten much better.
 
If your raynauds is a secondary condition to lupus then raynauds is not flaring but responding to cold or stress.  Of course, a successful treatment for lupus should help your raynauds unless it is a primary case.
 
Talk to your doctor about your conditions.  Moderate warmth might help a little but don't use cold....
 
Bill
 
 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/27/2011 11:56 AM (GMT -6)   
The problem is my Raynauds is secondary to my lupus.
I have no stress right now. I'm on two months vacation while school's out. I keep my house at 77 degrees with overhead fans going. Even though it's in the 90s outside I've tried to limit my switching from outside temp to inside temp.
I put my drinks in a thermal cup with a handle so I don't touch a cold cup.
I'm supposed to see him in a month. I guess that can wait until then.
Joy

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/27/2011 12:54 PM (GMT -6)   
I've had Raynaud's for nearly 15 years. I find mine is primarily triggered by caffeine and of course cold temps. If I go outside where the temps are below 65, I always wear gloves. I don't have much issues with my toes, but they do turn a lovely shade of blue! lol In the winters, I sometimes take Norvasc which is a vaso-dilator. Also, in the summer - If I am in the air, I wear warmer clothes. I have a sweater that takes up permanent residence near my door. I also keep a pair of gloves or socks by the fridge, so if I need something out of the freezer, I put the socks on my hands or gloves.

I just found out that my 15 year old daughter has the beginning of Raynaud's :(
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/27/2011 2:34 PM (GMT -6)   
It's just so painful when it hits. :((
I have several attacks a day of it. about every hour. :((((
My hands feel like they're on fire, but to anyone touching them they are cold as ice.
Joy

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/27/2011 3:18 PM (GMT -6)   
I can totally relate! It sort of feels like you dipped your hands in boiling oil huh? Maybe you can ask your doc for a vaso-dilator?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/27/2011 6:26 PM (GMT -6)   
I'm thinking about that...
Joy

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 6/29/2011 9:01 AM (GMT -6)   
Hi~
I like to use tube socks filled with feed corn heated in the microwave wrapped in a towel. And my neuro prescribed neurontin which has helped the boiled in oil burning immensely.
hugs,
suetoo
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/30/2011 8:15 PM (GMT -6)   
Neurontin made me feel like a zombie. Suetoo, did that not happen to you or did you get used to it?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 7/1/2011 6:59 AM (GMT -6)   
Hi~ Sherry,
No, not at all. In fact, I felt immensely better within 5 days of starting it, and when I had started Plaquenil 3 months earlier, I noticed a big improvement in my joint pain within 2 weeks. I am very med tolerant, too.
hugs,
suetoo
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.

m&mx4
New Member


Date Joined May 2010
Total Posts : 3
   Posted 7/3/2011 4:44 PM (GMT -6)   
It is most likely neuropathy, which I get along with the Raynauds usually every winter.  Amitripline works great for the pain (and not very hard to go off during summer) and helps to sleep at night, and not as many side effects of nurontin. 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/3/2011 7:41 PM (GMT -6)   
I've been in a bad flare these last two days.
Raynauds hitting every few minutes, Constant headache, temperture actually dropping lower than normal (75.1), fatigue so bad I didn't want to leave my chair and random joint pains.

I am not going to go like I've done this last week again. That was just too much on me.
Joy

sda176
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/4/2011 2:22 PM (GMT -6)   
I do cold and heat exercises and when it gets really bad on the verge of a lesion i take Viagra. I know i know but it works wonderful and i haven't had as many issues for about 3 to 4 years now. One thing is does make females moody.
With God all things are possible.
DX Lupus, Raynaud's, Scleroderma March 2002
Shirley

townsend
Regular Member


Date Joined Mar 2004
Total Posts : 97
   Posted 7/5/2011 7:58 PM (GMT -6)   
I do the "rice sock" thing, where you put dry, uncooked rice in a sock, tie the end, and microwave it. I usually use that, however for my eye's compress, when my bursitis gets real bad. But it can certainly help with hands, too.

You don't want your fingers to stay frozen for too long - it can hurt the vessels. Swinging them around, "power-walking" and pumping those arms like Jane Fonda is cheering you on will help to bring the blood back to your fingers.

Also, and this is KEY to my survival in NYC winter: I order handwarmers online in bulk and always carry a set and a ziplock baggie in my backpack. They last for up to 8 hours, but you can slip mid-used ones in air-tight ziplock baggies and they'll stay good for at least a few more days, until you use them again..... I don't buy fur, but I gave in and bought fur-lines shearling mittens for winter, and use those with glove liners and handwarmers in winter. And I ALWAYS carry the liners with me, even in summer - darned air conditioning!
Diagnosed: Sjogren's '94, Raynauds 2000, Vasculitis 2002, Lupus SLE 2004, Lupus Nephritis 2007 - progressive w/ "diffuse proliferative lesions", controlled, and what looks like Discoid coming and going.
Meds:
LUPUS: Cellcept 2,500 mg, Chloroquine 250 mg, Methylprednisolone 16 mg. BP: Spironolactone HTZ 25/25, Metropolol 100, Cozar 100, Nexium, Salagen. Vitamins/Minerals: Multi, Calcium, D, Iron

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/6/2011 6:43 AM (GMT -6)   
They actually make gloves that have thermal wires that go into the fingers of a glove. I believe they are made for mountain climbers or hikers that go into frigid temps. They're rather bulky though. They are battery operated. I almost got them but like I said, they a bit bulky so doing things would be difficult, however, if you are just sitting around I think this would be a good thing. I told my husband that if they ever made them into a thinner glove, I would LOVE to get a pair!
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/6/2011 6:54 PM (GMT -6)   
I found out if I'm having a really hard time I can run warm water over them and they feel better. I've also resorted to sitting on them for a little bit to warm them up.
I'm going to try that handshaking idea. This winter I'm going to get some of those handwarmers. It doesn't get real cold until December down south.
Joy
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, June 20, 2018 7:46 AM (GMT -6)
There are a total of 2,973,525 posts in 326,103 threads.
View Active Threads


Who's Online
This forum has 161099 registered members. Please welcome our newest member, Falksi.
425 Guest(s), 14 Registered Member(s) are currently online.  Details
ezhoe, Dahlias, tickbite666, Serenity Now, convertible68, afayth, Tom1, RobLee, ejc61, phillyroll05, OriolCarol, cppoly, straydog, iPoop