no diagnosis yet, but being put on amantadine

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angiek
New Member


Date Joined Jul 2011
Total Posts : 17
   Posted 7/14/2011 1:57 PM (GMT -6)   
Hey,
 
I haven't been diagnosed with lupus yet but I see a rheumy on July 25th. I originally saw a neuro but the only thing she found was high ana (I was having muscle weakness, lots of tingling, some numbness, severe fatigue) She has mentioned several times the possibilty of lupus. I do have other symptoms that after reading alittle lupus could def. be that. Sores in the mouth, mild butterfly rash, unexplained muscle pain, some joint pain.
 
The neuro however did prescribed amantadine...she said maybe it will help my fatigue but my pharmacist who is also a friend and kind of a co-worker said it was an anti-viral and anti-parkinsons med and seemed unsure why the doc would prescribe that. I called my doctor's office this morning to ask  about it as it warns about taking it when you have low blood pressure which I have (normal for me is 90/70, has been as low as 80/50) but they haven't called back at all yet and the pharmacist thinks it probably ok but said I should wait and take it when my hubby is home in case it makes me dizzy and lightheaded I don't pass out while I'm alone with my 2 toddler age kids. Anyone else been put on this med?? It says that drowsiness is a side-effect...kinda thought that was the problem in the first place...why would I want to take a med that could make my fatigue worse? I know she is the doc and obviously knows more than I do about medication but it just seems odd to me.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/14/2011 4:47 PM (GMT -6)   
Why didn't she try plaquenil? It works great on fatigue problems.
I'd hold off until the the rheumy appointment.
Joy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 7/14/2011 7:01 PM (GMT -6)   
Dr probably prescribed it since "Amantadine is used to alleviate the symptoms of fatigue in multiple sclerosis."

Go ahead and do what the doctor says. Rhumeies need as many clues as possible, and how you react to it will help them diagnose the problem.

That's my educated opinion after 9 years of having & studying Lupus & other auto-immune diseases.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

angiek
New Member


Date Joined Jul 2011
Total Posts : 17
   Posted 7/14/2011 7:52 PM (GMT -6)   
I did finally here from the doctors office and they said not to take the medication. The doctor didn't even think about the blood pressure...I'm sure they can't remember every side effect for every drug. I'm gonna wait till I see the rheumy and see what he thinks about going on medication.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/14/2011 8:09 PM (GMT -6)   
Thank goodness for your friend.
Joy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 7/14/2011 8:10 PM (GMT -6)   
Sounds like a plan!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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