Hi! and welcome,
I am so glad you found us. You need a rheumy asap and shame on your dr. for blowing off your abnormal lab work. I second guessed myself for 5 years, too. You should be proud of yourself for asking for copies of your labs and listening to what your body was telling you. I wrote a Misery Log for 5 yrs, and used the 1-10 scale to keep my subjective misery as objective as possible. I kept a notebook of every test, every study, and a calendar to document patterns in my neuro symptoms. When I had to apply for SSD retirement, that notebook and calendar was a blessing. Keep pushing and keep posting,
ps. if you find a few rheumys close enough to where you live, make a few calls, and ask to speak to the office nurse, (you don't even need to give your name, just explain you are trying to find a dr. who takes care of patients with lupus). Ask her/him if "their" doctor sees alot of people with autoimmune illnes and are accepting new patients/your type of insurance and you should be able to get a feeling for whether that dr. is someone you'd like to see. Don't ever hesitate to be an advocate for yourself. Take notes as you speak of names, times, and questions. Don't hesitate, if your budget allows, to make an appt. for a consult.
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.