Over the past 3 - 4 years I have had episodes of extreme fatigue that come and go. I have been diagnosed with nocturnal epilepsy, depression, and degenerative disk disease. After being referred to physical therapy for upper back and shoulder pain last fall, I asked for some lab work to be done. My primary doctors office called to tell me that my lab results were normal. That was in October of last year. Recently, I requested a copy of those lab reports because of my ongoing health problems. It showed: ANA 1:640, homogonous; RBC low at 3.98, lymph % low at 18.6, BUN low at 5; and previous lab reports continue to show an elevated thyroid stimulating immunoglobulin.
So I saw my primary doctor this week, and he blew off everything. Only because of my persistance did he order more labwork and refer me for some tests - EKG, Echo, Chest x-ray, and an upper GI scope. My sed rate was normal at 10. My RBC and lymph % are still low, my albumin was high. Still waiting on result of all other tests, and waiting to have the scope done.
According to the 11 criteria listed for lupus diagnosis, I see that I meet 3 definite and 2 possible criteria - neurologic disorder (seizures and depression), low blood counts (red blood cell and lymph%), positive ANA at 1:640 and homogonous. As for the 2 possible ones - I don't have any problems with my peripheral joints, but my sacroiliac joints are swolen and painful and the knots can be felt by someone rubbing my back, and my shoulders ache and hurt - both of those have been issues for several years and all my doctor has done is send me to physical therapy which didn't really help. The second is the "other positive blood tests that indicate autoimmune disease" - I don't know if the Thyroid stimulating immunoglobulin counts... it is an autoimmune issue where my thyroid is attacking itself.
I also had shingles last year, which is autoimmune.
After doing research, I am wondering if I should ask for/push for a rheumatologist referrel...???
Thanks for any help or suggestions.