I just wanted to say we share a very similar story. With me it was the positive ANA and CRP, rather than sed rate. Recently had a very mildly positive anti CCP (RA test). I've been on Plaquenil for close to 3 yrs. It worked great for awhile, making me feel much better, and then I was back to almost where I was before I started. I'm better again now - have given in and just take Advil every day along with it - which I don't like to do, but it helps so much - I just try to take as little as possible. At my last appt., rheumy gave me a script
for Prednisone for flare ups of pain - which I haven't done yet. I also have osteoporosis and OA of my SI joints.
I also learned the hard way that I can't tolerate the sun and it will cause flares - which is what it sounds like you are going through. I kept trying to believe it was because I had worked too hard in the yard, walked too far, etc. that made me feel so totally awful afterward, but it just got worse and worse and finally I made the connection and try to steer clear until after 5PM or later, and even then I'll wear a hat (along with Sunscreen every single day, rain or shine). Even flourescent lights in big box stores can set me off.
My rheumy is sending me to a spine center because of the OA in the SI joints (and elsewhere), and I'm to see a metabolic bone doc in Sept. I am very tired of doctoring as well. My dx has been fibro, then UCTD, then rheumy thought RA, now not so sure....we're still trying to put it all together.
I had to get on the name brand Plaquenil also - I know it is helping, even though I don't feel great and still have pain - I believe it keeps me out of all out flare/flu-like symptoms most of the time. I also have the dry mouth problems and sometimes dry eyes. I've been given Tramadol to take, but like you - it sits in my cupboard mostly for fear I will rely on it too heavily.
I found out I have Celiac and have been on a gluten free diet for nearly 2 years. Didn't seem to make all that much difference for awhile, but I believe now that it has made a very positive difference. Didn't solve all my problems, clearly - but there have been some distinct improvements.
Anyway - just wanted you to know I understand the frustration and feeling so stuck. I hope your results will lend at least a clue, if not a diagnosis - and that you will feel better sooner.