Food intolerances and symptoms/flares

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Regular Member

Date Joined Jan 2011
Total Posts : 82
   Posted 7/20/2011 8:10 PM (GMT -6)   
Hey guys, I haven't been here for a while (was feeling so good for a while there that I didn't "need" to come here!), so not sure if you'll remember me.

Anyways, I wanted to hear about other people's experiences with changing their diet. I'm considering going gluten-free for a while (or at least wheat-free) to see if it helps with my symptoms (mainly severe fatigue, joint pain, and pleuritic chest pain). Has anyone else had any luck with using diet to control symptoms? I already try to avoid dairy but could certainly improve in that area... are there any other big offenders out there that I might avoid?

I don't have a lupus diagnosis, I actually saw a new specialist in May and he basically said that I am a medical mystery :(.... he considered lupus and sarcoidosis but doesn't think I have either. So I'm back to square one - "autoimmune disease not otherwise specified". Many (most) of my symptoms match lupus though so I find some comfort reading this forum :).

Thanks for any input!!


Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 7/20/2011 8:23 PM (GMT -6)   
I've found out fresh dark cherries eases my pains in my hands and feet.

Forum Moderator

Date Joined May 2005
Total Posts : 7667
   Posted 7/20/2011 9:23 PM (GMT -6)   
New specialist -- what variety? Only a rheumotologist is trained in diagnosing auto-immune diseases.

Gluten-free seems to help several people -- it helped with some stomach/digestion issues I was having, but not with other aches & pains.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Jan 2011
Total Posts : 82
   Posted 7/21/2011 10:26 AM (GMT -6)   
I saw a Dr. who is a rheumatologist, opthamologist, and immunologist and who has done years of research on uveitis and coexisting rheumatic diseases. It seemed to be the perfect fit and he's only one of 2 specialists on uveitis and arthritis in the country. 3 or 4 dr's came in and looked in my eyes (I have chronic uveitis and resulting scarring on my retina that is apparently very interesting), and went over my hx and what my other rheumatologist has been trying to manage my symptoms. Pretty disappointed that he didn't "know" what was wrong, but at least he had some ideas of where to head next with treatment - he upped my Humira from every other week to every week, and changed my MTX to subq. I'm still trying to taper my prednisone but everytime I go below 15mg I start to flare again. I also had LEEP done for cervical dysplasia and that seemed to trigger a flare as well.
Guess I'm just tired of the same old run around with prednisone and hoping for something else that might help...

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